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The Autistic Spectrum

Documents and links to explain the tools used to assess your child, information on how to write an appropriate IEP with appropriate goals and objectives, links to special ed laws, and resource guides and info on your rights and the rights of your child.

AHA/AS/PDD-Long Island based organization providing support and education for families, individuals and professionals affected by Aspergers Syndrome, High Functioning Autism, and Other Pervasive Developmental Disorders.

Autism Help For You.

Different Roads to Learning.

Educators for Social Responsibility.

Learning (Dis) Abilities ~ Autism

MedlinePlus:Autism

Polyxo.com is a resource driven by parents and professionals who are teaching children with autism.

Social Cognitive Disorders.

Teaching A Process To The Autistic Child.

U. S. Department of Education



“FAPE” for the Autistic Child

A FREE, APPROPRIATE AND INDIVIDUALIZED PUBLIC EDUCATION

 

I. INTRODUCTION

II. SPECIFIC PROVISIONS OF THE IDEA 

III. OVERVIEW OF THE IDEA IN COMPARISON TO SECTION 504 OF THE

REHABILITATION ACT AND THE AMERICANS WITH DISABILITIES ACT

(ADA)

IV. QUALIFYING AS A CHILD WITH A DISABILITY 

V. EARLY INTERVENTION SERVICES FOR CHILDREN YOUNGER THAN

THREE YEARS OLD

VI. SPECIAL EDUCATION 

VII.  INDIVIDUALIZED EDUCATION PROCESS

VIII. APPROPRIATE EDUCATION 

IX. RELATED SERVICES

X. MAINSTREAMING, INTEGRATION, FULL INCLUSION AND LEAST

RESTRICTIVE ENVIRONMENT 

XI. MEDIATIONS AND DUE PROCESS HEARINGS 

XII. OTHER IMPORTANT TOPICS FOR DISCUSSION 

XIII. CONCLUSION 

 

-------------------------------------------------------------------

 

I.          INTRODUCTION

 

A.   What is Special Education Law at Roberts, Adams & Jewell?

 

1.    Special Education Law is a very focused legal practice area. As special education attorneys, our aim is to empower parents of children with disabilities to help their children achieve full potential in an educational setting.  Our firm strives to equip parents with self-advocacy skills.  We hold seminars at parent support group and regional center meetings, and provide updated information on statutes and case law that regulate special education on both the state and federal level.

 

2.  A special education attorney represents children with disabilities at Individualized Education Program meetings (also called "IEP" meetings), Due Process Hearings and if the need arises in court proceedings. A special education attorney represents the child's interests to ensure that he receives all special education and related services (i.e., physical therapy, speech therapy, etc.) available to him under the federal and state laws.

 

B.    The State of California and Special Education

 

1.     In the year 2000, Los Angeles Times reported that California is one of the worst states in terms of compliance with special education laws.  One in every ten children in Southern California has a disability that entitles them to receive related services or Designated Instruction Services (DIS).  Related Services and DIS are two names that describe services given to children with disabilities that will help them to benefit from their free appropriate public education.  A school district's failure to

fund all necessary related services to such a child is a violation of both state and federal law. According to the Los Angeles Times there are currently 628,848 students receiving these services in California, approximately 8,291 of these children attend public school in Orange County.

 

C.  What Laws Govern the Special Education Field?

 

1.  There are both federal and state laws that govern the field of

special education. These laws are:

 

Þ      The Individuals with Disabilities Education Act ("IDEA")

 

Þ      Section 504 of the Rehabilitation Act

 

Þ      The Americans with Disabilities Act ("ADA")

 

Þ      The California Education Code

 

Þ      Federal and state implementing regulations

 

D.   What Is The IDEA?

 

1.   The Individuals with Disabilities Education Act ("IDEA") was enacted in 1991 (an amended version of its predecessor the Education for All Handicapped Children Act or EAHCA) to provide a free, appropriate and individualized public education to eligible children with disabilities, given in the least restrictive environment.  In other words, IDEA is federal law and mandates that special education and related services are to be provided to children with disabilities at no cost to parents.

 

2.  The IDEA was amended in 1997.  The new IDEA focuses its attention on necessary related services (accommodations) for disabled children to have access to the general education curriculum.  Previously, the law did not specifically address general curriculum involvement of disabled students.  The IDEA now focuses on improving teaching and learning with a specific focus on the Individualized Education Program ("IEP") as the primary means of developing a child's involvement in the

general curriculum.

 

3.   The IDEA 1997 statutory language states "Over 20 years of research and experience has demonstrated that the education of children with disabilities can be made more effective by..having high expectations for such children and ensuring their access in the general curriculum to the maximum extent possible." 20 U.S.C. §1487 (5)(A).

 

II.   SPECIFIC PROVISIONS OF THE IDEA

 

A.  Civil Rights.  IDEA is a "grant statute" that creates civil rights.

 

B.  Substantive Protections.  The IDEA requires:

 

1.  All children with disabilities be given an education.

 

2.  Education and Related Services must be provided up to the age of 21 (California extends this to age 22).

 

3.  Education must be free of charge to parents.

 

4.  Education is not simply academic but includes self-help skills

and vocational skills.

 

5.  Education must be provided in the "Least Restrictive

Environment" (LRE).

 

6.  Education must be individualized and appropriate to the

child's needs.

 

C.   Procedure Protections.  Procedural Protections of the IDEA are:

 

1.   A child's right to notice of a proposed decision about his

educational program.

 

2.  Notice to parents of procedural protections and substantive

protections given to them by the IDEA.

 

3.  Right to an IEP.

 

4.   Right to an administrative hearing, court hearing and the

right to a record of the hearing.

 

5. Right for child to remain in his educational setting until

dispute is resolved (Stay-Put Provision).

 

6.  Right to attorneys' fees if family is prevailing party at an

administrative hearing.

 

III.        OVERVIEW OF THE IDEA IN COMPARISON TO SECTION 504 OF

THE REHABILITATION ACT AND THE AMERICANS WITH DISABILITIES

ACT (ADA)

 

A.  Summary Of IDEA, Section 504, the ADA & CA Education

Code.

 

1.       The IDEA is unique in comparison to Section 504 and the ADA in that the IDEA provides federal funding to states specifically for special education programs and related services.

 

2.       Section 504 is a non-discrimination statute that makes it illegal for any programs receiving federal funds to discriminate against an individual based upon their disability.  Section 504 requires public entities to provide reasonable accommodations to persons with disabilities as long as the accommodation doesn't fundamentally alter the program.

 

3.       The ADA is similar to Section 504 except that there is no federal funding requirement.  In other words, even private entities (private schools) not receiving federal funds are subject to the ADA's anti-discrimination provisions and are mandated to provide reasonable accommodations to disabled persons.

 

4.       The California Education Code given educational rights similar to what the IDEA and Section 504 provide to children with disabilities.  In some cases, the California Education Code grants more rights and privileges to children than federal law.

 

IV.        QUALIFYING AS A CHILD WITH A DISABILITY

 

               A.      General Requirements.  A child must be assessed to determine whether he has a disability that is covered under the IDEA, Section 504 and the ADA or a combination of the three before related services and special education will be provided.

 

1. IDEA Requirements.  The IDEA covers people with the following disabilities: "mental retardation, hearing impairments (including deafness), speech or language impairments, visual impairments (including blindness), serious emotional disturbance (hereinafter referred to as 'emotional disturbance'), orthopedic impairments, autism, traumatic brain injury, other health impairments, or specific learning disabilities; who, by reason thereof, need special education or related services.  The

term 'child with a disability' for a child aged 3 through 9 may, at the discretion of the State and the local educational agency, include a child experiencing developmental delays."

 

2. Section 504 Requirements.  Section 504 covers people with the following disabilities: "any person who (i) has a physical or mental impairment which substantially limits one or more major life activities, (ii) has a record of such impairment, or (iii) is regarded as having such an impairment."

 

3. ADA Requirements.  The ADA covers people with the same disabilities as Section 504, but the ADA applies to public and private entities.

 

B.Labeling And The IDEA.  Some problems with the IDEA definitional requirements include:

 

Labels do not always correctly represent the characteristics of the child.

Labeling can stigmatize a child in school.

Labeling can create a self-fulfilling prophecy.

Labels do not help teachers in finding an effective way to educate children.

Some District's make offers of placement and services to your child based on his/her label rather than his/her unique needs.

 

V.         EARLY INTERVENTION SERVICES FOR CHILDREN YOUNGER

THAN THREE YEARS OLD

 

A.  General.  The Individuals with Disabilities Education Act ("IDEA") establishes important rights for and provides support services for children with disabilities including children from ages zero to two years as well.

 

B. Purpose.  The purpose of a law that provides early intervention services is to enhance the development of infants and toddlers with disabilities and to minimize the potential for delay.  It is also designed to reduce educational costs by minimizing the need for special education and related services after infants and toddlers reach school age.

 

C. Infant/Toddler.  An infant or toddler with a disability means an individual younger than three years old who needs early intervention services because they are experiencing developmental delays in one or more of the following areas: cognitive development, physical or motor development, social or emotional development, or adaptive development.  If a child is experiencing such a delay a referral may be made orally or in writing by a parent to the regional center or school district.

 

D.  Process.  Once a referral has been made, the regional center or the school district must complete an evaluation and assessment, hold a meeting to determine eligibility, and develop an Individual Family Service Plan ("IFSP") within forty five days of receipt of the referral.  The IFSP identifies the services appropriate to meet the unique needs of the infant or toddler.  The IFSP must be in writing and will include a number of

items, such as: a statement of the infant's present levels of development, a statement of the family's concerns, priorities and resources, a statement of specific services including how often, how much, method of delivery, and dates for initiation of services.

 

E.  Responsible Agencies.  In California, early intervention services are provided under public supervision and at no cost to families.  The services must be designed to meet the infant or toddler's individual developmental needs.  They may include such things as: special education, speech and language therapy, occupational therapy, physical therapy, psychological services, parent and family training and counseling, among others.  Note that these services may be provided in the home, depending on the infant and family's needs.  If there is a disagreement between the parents and the district as to placement or early intervention services, the parents may file for a due process hearing.  If the IFSP is not being implemented or administered properly, the parents can file a compliance complaint to address the issue.

 

VI.        SPECIAL EDUCATION

 

A. Definition.  Special education is specifically designed instruction, at no cost to the parent, designed to meet the unique needs of a child with disabilities.  Instruction can include classroom instruction, home instruction as well as instruction provided in hospitals and institutions.

 

B.  Individualized and Appropriate.  One of the major principles of the IDEA is that the education of your child must be individualized and appropriate to your child's needs.  In order for a school to receive federal funding and support under IDEA, the state must have a policy that ensures all children with disabilities receive a Free And Appropriate Education  ("FAPE").  The IDEA requires that the development of an appropriate special education program and related services occur through the development of an individualized education program "IEP"). 

 

VII.       INDIVIDUALIZED EDUCATION PROCESS

 

A.  IEP.  The IEP contains a written statement describing the child's present educational performance, short-term objectives and annual goals for development, specific services to be used, dates to begin and duration of those services, criteria, schedules, and procedures for evaluating whether those objectives are being met.

 

B. How Does It Start?  To begin the IEP process and request special education services for a child, a parent may simply write a letter to a child's teacher, principal, or the special education administrative office.  That letter tells the school that you are concerned about your child's educational process. The letter may also request that the school begin assessments for special education.  The school district must provide the parents with an assessment plan within fifteen days of receipt of the letter.

 Parents then have ten days in which to give consent to any assessments contained in the plan.

 

C. What If I Want A New IEP?  If a child is already receiving special education services, a parent can request a new IEP be scheduled whenever they feel it is needed.  The parent simply requests in writing that a new IEP be scheduled and the timelines stay in place.  The parent may also request new, additional, or different assessments are done prior to the IEP. An IEP is required to be held at least annually.

 

D. What Should I Expect At The Meeting?  The IEP is developed at a meeting.  The school district must take steps to ensure that one or both of the parents of the student attend the meeting and have the opportunity to participate.  The school must give advanced notice of the meeting written in the parents native language and the meeting must be at a mutually agreed upon place and time, or by conference call at the parents request.  The statute is clear and holds that the parent of a child with a disability is an equal member of the IEP team.

 

E. Who Can I Bring To The Meeting?  A parent may bring whomever they wish to the IEP meeting including, but not limited to an attorney, an advocate, a caseworker, or a friend.  The school district must ensure that the following people attend the meeting: at least one parent, at least one regular education teacher if the child is or may be participating in a regular education environment, at least one special education teacher, a district agency representative who has authority to approve all funding for related services, the persons who conducted

assessments of the child or a person qualified to interpret those

assessments, and the child if appropriate.

 

VIII.      APPROPRIATE EDUCATION

 

A. What Is An Appropriate Education?  Unfortunately the term "appropriate" as written in the statute is subjective and difficult to define.  This is because the IEP is to be developed to meet the specific needs of the individual child, supported by such services as are necessary for that child to benefit from the instruction. Noticeably absent in the language of IDEA are substantive definitions related to what levels of instruction are necessary.

 

B.   Different Standards Of "Appropriate".  Some states require that a child meet their maximum potential.  Other states only open the door and make access meaningful.  California does not require a child to meet maximum potential.  Instead, California follows the federal standard.  That standard has been set forth in Board of Education v. Rowley.   The Rowley standard holds that the state must provide the child with specifically designed instruction and supportive services necessary for that child to obtain some educational benefit from that instruction.  Two

good measures to determine whether a child is receiving an appropriate education under this standard are:

 

Þ      If the child is mainstreamed in a typically developing classroom, the child should be progressing through grades with a grade average of at least a "C;" or

 

Þ      The second, and more common method, is if the child is meeting the short-term objectives and annual goals as set forth in their IEP.

 

Þ      However, in many cases children may meet the two above-referenced criteria and still not be receiving FAPE for a number of reasons such as inappropriate goals and objectives, differential grading, the program does not address the child's specific areas of need among many other reasons.

 

IX.        RELATED SERVICES

 

 "Related Services" (called "Designated Instruction and Services" or "DIS" in California), are defined as any service that is necessary to help a child benefit from her special education program.  In other words, "to benefit from special education" generally means that the service must assist the child in making progress toward accomplishing the goals set out in the IEP.  Examples of Related Services include:

 

A.      Transportation (to & from school or alternative placement from the child's home).

 

B.      Speech-Language Pathology.

 

C.      Discrete Trial ABA/IBI or behavioral therapy.

 

D.      Psychological services.

 

E.      Physical and Occupational Therapy.

 

F.      Recreation (including therapeutic).

 

G.     Counseling services.

 

X.         MAINSTREAMING, INTEGRATION, FULL INCLUSION AND LEAST RESTRICTIVE ENVIRONMENT

 

A.  Legal Development.  Another fundamental principle of the IDEA is the requirement that children with disabilities receive their education with non-disabled peers to the maximum extent possible.  While the term "mainstreaming" is not found in the language of either the statute or its regulations, the concept of the least restrictive environment is provided for in the regulations.

 

B.  IDEA.  Federal law provides in part that each local educational agency must ensure that:".to the maximum extent appropriate, children with disabilities, including children in public or private institutions or other care facilities, are educated with children who are not disabled, and special day classes, separate schooling or other removal of children with disabilities from the regular educational environment occurs only when the nature or severity of the disability of a child is such that education in

regular classes with the use of supplementary aids and services cannot be achieved satisfactorily."

 

C.  Definitions.

 

1.       "Mainstreaming" refers to the placement of a student with disabilities into the activities of regular classrooms with typically

developing peers.  There is a strong congressional and judicial

preference for mainstreaming.  Children should be nainstreamed even if to accomplish such would require that special education staff be present, or the use of supplementary aides and services would be necessary.

 

2.       "Integration" generally refers to mainstreaming a student into a regular class as well as providing access to and participation in other activities within the school environment.  For example, a student may spend part of his day in a special day class and another part of his day in a regular classroom with typically developing peers.  The student should have access to non-academic activities with typically developing peers, such as recess, lunch, and dances.  Integration is often used to describe

the idea of integrating both the special day class and the regular

classroom as appropriately as possible. This term would differ

significantly from the concept of full inclusion.

 

3.       "Full inclusion" refers to the total integration of a student with disabilities into the regular education program.  This may be

accomplished with the assistance of all necessary support services.  Essentially, the student with a disability is a member of an age appropriate regular classroom full-time, with no assignment to a special day class.  The student may not be in that class all of the time.  He may need to leave in order to receive the appropriate related services developed in his IEP,

such as physical therapy, speech therapy, or occupational therapy.  Remember that LRE is an important concept in the IDEA. It is not the only consideration for each child.  Each child's education must be individualized and appropriate for that child.

 

4.       The Rachel Holland Test.  In considering whether a placement is appropriate for a child, courts have generally looked at the four-factor analysis found in the Rachel Holland case.  This case establishes the four part Ninth Circuit test, which holds that the court must examine:

 

a.             Educational benefits available to child in regular classroom supplemented with appropriate aides and services as compared with educational benefits of a special education classroom;

 

b.             Non-academic benefits to child of interaction with children who are not disabled;

 

c.             Effect of presence on teacher and other children in classroom in terms of disruptive behavior and/or undue consumption of the teacher's time; and

 

d.             Cost of mainstreaming in regular classroom.

 

Note that while the Rachel Holland case mentioned that cost was a factor to be considered in determining appropriate placement, it also held that providing a part-time academic aide and making curriculum modifications would have cost the school no more than special education placement.  Generally the majority of the related services necessary for a child to be placed in a regular classroom setting would cost the district little or no expense.

 

XI.        MEDIATIONS AND DUE PROCESS HEARINGS

 

A.  Mediations

 

1.   What Is A Mediation?  A mediation is a voluntary, confidential, and informal meeting at which the parties and an experienced, impartial mediator attempt to resolve the dispute in a non-adversarial atmosphere.  The mediator does not provide advocacy or legal advice to either side but facilitates communication between the parties.  The participation of the

neutral mediator increases the possibility that the parties will reach a mutually satisfactory resolution.

 

2.    What Are The Benefits Of Mediation?  The vast majority of

disputes resolve through mediation.  Mediation is the preferred method of resolving disputes for a number of reasons, including the following:

 

a.       The Continuing Relationship Between Parties- mediation helps to maintain a cooperative relationship in the future if the dispute is settled by mutual agreement;

 

b.       Flexibility- mediation allows a great deal of flexibility in reaching a mutually acceptable settlement/written agreement.  When a dispute goes to hearing, the hearing officer makes the final decision that may not satisfy either party;

 

c.       Immediate Implementation- if an agreement is reached in mediation, the resolution is written into the form of an agreement that same day and can be immediately implemented.  Hearing decision take much longer;

 

d.       Less Costly- mediation is less costly in terms of money, time and personal stress.

 

            B.         Due Process Hearings

 

1.  What Is A Due Process Hearing?  A special education due

process hearing is a formal proceeding where the parties are given the opportunity to present witnesses, documentary evidence, and oral and written argument in support of their respective positions on disputed special education issues.  The due process system is designed to resolve disputes between educational agencies and parents of a child with a disability or a child suspected of having a disability.

 

2.   How Does A Party Proceed To A Due Process Hearing? 

When a party requests a hearing, the Special Education Hearing Office notifies the other party and sets a hearing date.  At the same time, the Hearing Office automatically assigns a mediator to the case to give the parties an opportunity to resolve the dispute without going to hearing.  If the dispute is not resolved through mediation, or if one of the parties elects not to mediate, the case proceeds to hearing.

 

3.   What Is The Difference Between A Due Process Hearing And

Mediation?  Compared to mediation, a due process hearing is a more formal, trial-like legal proceeding.  At the hearing, all parties are given a chance to present evidence and argument before an impartial hearing officer.  The hearing officer then issues a written decision, which is the final administrative decision resolving the matter. 

 

XII.       OTHER IMPORTANT TOPICS FOR DISCUSSION

 

A.   Behavior plans.

 

B.  Student Discipline, Suspension/Expulsion.

 

NOTE:    Pre-Expulsion Assessment (Cal. Educ. Code § 48915.5)- the pre-expulsion assessment provision of this section provision was removed from the 2003 California Education Code.  Section 48915.5 no longer has a provision that requires a pre-expulsion assessment.  Under the law as it exists now, a district is not required to conduct an assessment prior to removing a student with a disability from his or her current placement.  However, the procedural safeguards under 34 C.F.R. § 300.519 through § 300.529 still apply.  These provisions require a district to hold an IEP meeting within 10 days of removing a student from his or

her placement.

 

C.   DTT v. TEECH v. IBI as a related service.

 

D.  Compliance Complaints/Due Process.

 

E.   SOL and Timelines.

 

F.  Stay puts.

 

G.  Attorneys Fees.

 

H.  Assessment and Testing.

 

I.   Medication

 

XII.       YEAR IN REVIEW-Case and Hearing Office Decisions that effect

autistic children

 

            A.   Byron Union Sch. Dist., 35 IDELR 49 (SEA CA 2001)

 

1.    Facts: Hearing Officer rejected the district's contention that an 11-year-old student with autism required placement in special day class in order to receive FAPE.  Hearing Officer agreed with parents claim that student was making progress in regular classroom, and that placement was the LRE.

 

2.   What This Means: Nonacademic benefits of a regular

education placement must be considered in evaluating the student's LRE (least restrictive environment).  Interaction with peers should be considered as a factor.

 

            B.         Amanda J. v. Clark County Sch. Dist., 35 IDELR 65 (9th Cir. 2001)

 

1.  Facts:  The district's failure to give parents copies of

evaluation reports violated the procedural requirements of the IDEA and denied the student FAPE.

 

2.  What This Means: Procedural errors that prevent parents from

fully participating in the creation of an IEP and result in lost educational  opportunity for the student will be considered a significant IDEA violation  and deprivation of FAPE.

 

     C. San Francisco Unified Sch. Dist., 35 IDELR 21 (SEA CA 2001)

 

1.  Facts: Parents removed their son from the district's

placement and unilaterally placed him in a private school.  Parents were only awarded reimbursement for 70% of the private school tuition because the private school lacked a therapy component and the parent  did not give the district proper notice of their intent to place the student in a private school.

 

2.  What This Means: Even if a school district denies a student

FAPE, parents must demonstrate the appropriateness of a private placement prior to enrolling their child in such a placement.

 

      D.   Pleasant Valley Sch. Dist., 35 IDELR 76 (SEA CA 2001)

 

1.  Facts: District's OT services as set forth in IEP were not

designed to meet the autistic student's unique needs and did not provide an educational benefit.  In addition to awarding compensatory OT, the hearing officer ordered the district to reimburse the parents' insurance company for the cost of their privately obtained OT.

 

2.  What This Means: Parents of students with disabilities cannot

be required to utilize their private medical insurance benefits when the use of those benefits would cause them to incur a financial loss.

 

      E.  Buckhannon Board & Care Home, Inc. v. West Virginia Dept. of Health and Human Services, 35 IDELR 160 (U.S. 2001)

 

1. Facts: The U.S. Supreme Court held in Buckhannon that

prevailing party status (for the purpose of recovering attorneys fees in ADA and FHAA cases) was not appropriate when a party failed to secure  judgment on the merits or a court-ordered consent decree, but  nonetheless achieved the desired result because the suit brought about a voluntary change in defendant's conduct.

 

2. What This Means: The effect of this case on IDEA cases is

unclear because the decision does not specifically mention the IDEA.  But it may affect IDEA cases in the future.  Some Circuits have applied this reasoning to IDEA cases holding that parents cannot seek an award of attorneys fees and costs without an change in the legal relationship of the parties such as an issuance of a Consent Decree.  The 9th Circuit (this includes California) has recently held that a legally enforceable settlement agreement is sufficient.  Please note as indicated below that in Student with a Disability v. Oxnard Union High, 37 IDELR 4 (C.D. Cal. 2002) this reasoning has been extended to include an IDEA case.

 

    F.  Zasslow v. Menlo Park City Sch. Dist., 2001 WL 1488617

(N.D. Cal. 2001).

 

1.    Facts:   Parents raised several issues at a due process hearing.  They obtained the desired result on some of the issues, but not on all of the issues.           

 

2.       What This Means: Under the precedent set in the 9th Circuit, parents do not have to prevail on every issue at due process to considered a prevailing party.  To receive an award of attorneys' fees it is sufficient that "some" relief is obtained.

 

3.   The 9th Circuit has frequently reiterated what has been called the Significant Issue Test.  This test comes from Hensley v. Eckerhart, 461 U.S. 424 (1983).  Ninth Circuit case law generally adopted this approach, which allows parents to recover all of their attorney fees, as prevailing parties, as long as they succeed on any significant issue. Success is not limited to the due process hearing context, but also extends to settlement and mediation.  Therefore, parents' ability to recover attorneys' fees is broad.  

 

G.   Johnson v. Special Education Hearing Office, 36 IDELR 207

(9th Cir. 2002).

 

1.  Facts: Parents of a 3-year-old with autism was not allowed to

revise a stay-put order.  The order allowed the district to provide services comparable to those listed in the IFSP, rather than the exact same educational program.

 

2.  What This Means: Parents may not be entitled to the exact

same vendors and providers under stay put.  If a district provides a comparable program, it may be enough.

 

   H.   Student with a Disability v. Oxnard Union High, 37 IDELR 4

(C.D. Cal. 2002)

 

1.  Facts: Court held that the parents' legally enforceable private

settlement was enough for them to be declared the prevailing party for purposes of attorneys fees.  The Court also applied a three-year statute of limitations to the action.

 

2.  What This Means: If parents reach a settlement with the

district prior to hearing, they can be the prevailing party and may initiate a separate action seeking to recover attorneys fees.  Parents have three years to bring an action in district court for attorneys fees.

 

3.  Warning: Districts are also aware of these recent decisions

regarding attorney fees and costs.  Unfortunately, some Districts will not severe the issues of attorneys fees in their settlement agreements and may even force parents to barter educational programming against their attorney fees.

 

   I.   Regan-Adkins v. San Diego Unified Sch. Dist., 37 IDELR 69 (9th Cir. 2002)

 

1. Facts: 9th Circuit concluded that there is a legal presumption

in favor of educating students with disabilities with their nondisabled peers to the maximum extent possible.

 

2.  What This Means: IDEA's mainstreaming provision directs

district not to remove a disabled child from a regular classroom unless the nature and severity of the disability is such that education in regular classes cannot be achieved satisfactorily.

 

    J.   Goleta Union Elementary School v. Ordway, 166 F. Supp. 2d

1287 (C.D. Cal. 2001)

 

1.  Facts: The district, under supervision of a district

administrator, unilaterally removed a student from his placement under his IEP and placed him in a residential facility.  Parents were permitted to bring a claim against the district administrator for damages under § 1983, for violating the student's Civil Rights.

 

2.  What This Means: A separate action for damages against a

district official is permissible.  Parents may recover damages under § 1983 for violating provisions of the IDEA.

 

K.    Gellerman v. Calaveras Unified Sch. Dist., 37 IDELR 125 (9th Cir. 2002)

 

1.  Facts: Court held that the district did not have a legal

obligation to provide a classroom aide of the parents' choice as long as the aide selected is qualified.

 

2. What This Means: As long as the district selects a qualified

classroom aide, they are complying with the law.

 

   L.   Robb v. Bethel Sch. Dist. #403, 37 IDELR 243 (9th Cir 2002)

 

1.  Facts: Court held that parents could not bring a § 1983 action

for damages until they exhausted their IDEA administrative remedies because they raised issues that could be redressed by the IDEA administrative process.

 

2.  What This Means: This prevents parents from circumventing

the IDEA exhaustion of remedies requirement by limiting their claim to only money damages.  The exhaustion requirement is excused, however, when allegations that cannot be redressed by the IDEA's administrative

procedure, such as abuse, are involved.

 

   M.  Porter v. Board of Trustees of Manhattan Beach Unified Sch.

Dist., 37 IDELR 241 (9th Cir. 2002)

 

1.  Facts: Parents were not required to exhaust the IDEA

administrative process after they obtained a due process decision.

 

2.  What This Means: When parents prevail at due process under

the IDEA, they are not further required to proceed through the

administrative process before they file a court action.

 

XIII.      CONCLUSION

 

In conclusion, the IDEA is written to involve parents as equal members of the IEP Team.  Section 504, the ADA and the California Education Code work to fill in the any gaps for students with disabilities. At Roberts, Adams & Jewell, we believe that it is important that parents of children with disabilities be fully informed as to their rights and responsibilities under the law.  Knowledge of the law can itself be the most powerful problem solver for parents.  We understand that parents of children with

disabilities will have to work with their local school district for many years to come.  For this reason we strive to build a powerful relationship between a well-informed parent and an experienced legal representative.  This relationship will secure the appropriate services and protect the rights of the disabled child.

 

 

http://www.tacanow.com/specialedparentinfo.htm

 

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INFORMATION FOR TEACHERS
 
This information was originally published as a booklet for teachers by the Ministry of Education in New Zealand in 2000.
 

The umbrella term "autistic spectrum disorders" is used to acknowledge that there is a range of disorders that share characteristics and includes both autism and Asperger syndrome. The focus of this resource is on students in the middle rather than at the extreme ends of the spectrum.

Autistic spectrum disorders are a group of pervasive developmental disorders. They are relatively uncommon, can affect one person completely differently from another, and are life-long. Skill development can be very uneven. For example, a person with one of the disorders may be extremely gifted in some academic areas and yet show very poor ability in others. Another may have poor social and self-management skills.

Every student with an autistic spectrum disorder will have a unique range of abilities and needs.

Characteristics of Autistic Spectrum Disorders

Each person on the autistic spectrum will show particular characteristics to varying degrees and in unique combinations. All people with autistic spectrum disorders have what is referred to as the "triad of impairments":

  • Social interaction - difficulty with making friends e.g., they may appear distant to other people.
  • Social communication - difficulty with verbal and non-verbal communication e.g., not really understanding the meaning of gestures, facial expressions or tone of voice; not knowing when it is appropriate to start and stop talking.
  • Imagination - difficulty in the development of play and imagination e.g., having a limited range of imaginative activities, showing repetitive behavior.

Although it is relatively easy to describe the characteristics of autistic spectrum disorders, diagnosis is a complex process because it is only in particular combinations of several of these characteristics that the diagnosis is made. However, the earlier the diagnosis, the better the chances are of that person receiving appropriate help and support.

Autistic spectrum disorders are pervasive. This means they affect the individual at school, at home, in play, fun and relaxation, on the sports field, within their family and, in the community and while pursuing their special interests. Those who spend the most time with the student (especially their families) will understand their abilities and difficulties, obsessions and phobias. They are likely to have developed many coping strategies that, when shared, will help everyone to tune into the student's unique needs.

How Teachers Can Make a Difference

Good teaching can make a difference, and high expectations (as long as they accept the child's difficulties) are as important ... in autism as for any other group. [Author Unknown]

Finding practical and effective approaches to enable a student to achieve their goals depends on identifying particular strengths and weaknesses, interests and aversions. Students with autistic spectrum disorders are actively seeking to make sense of a confusing world. Their problem-solving strategies may appear unusual to other people but not to them - they are simply working through a process.

These children need help to interpret the world. Just as you would not expect someone who was blind to see, you cannot expect someone with autism to have social vision.  [Author Unknown]

For most students, school is a rich social environment, which can be surprising, stimulating, exciting and challenging. It provides opportunities for experimenting, engaging and learning.

For almost all students with an autistic spectrum disorder, however, school is a confusing, demanding and noisy place. It challenges their need for order and predictability. They can try very hard every day to work out the rules and do the same things as other students, but their disability means that they can still get it wrong, get laughed at and feel little sense of belonging or achievement. A normal day at school can leave them feeling anxious, overloaded, distressed and with low self-esteem.

Practical strategies can make a significant difference to the student, through supporting their social and communication skills and adapting and interpreting the school environment to their needs.

The quality of life of someone with autism depends more on the way we can adapt to their differences - rather than modify their efforts. [Author Unknown]

It is important to note that these strategies will not only help students with autistic spectrum disorders in the classroom but all students with social and communication needs.

Support Team

People with autistic spectrum disorders are highly individual and need equally individual packages of support. The first step towards providing support is for those working closely with the student to assemble an individual profile, including unique skills and needs. The family, school support staff and specialized team can then use this profile as the basis for individual education programs. The specialized team may include a specialist teacher or a Resource Teacher: Learning and Behavior, and a special education provider such as Specialist Education Services. No one person will have all the skills and expertise required. Together the team will provide the complementary skills required to meet the student's needs.

Adapting Classroom and Teaching Practices

It is only by understanding the particular challenges faced by students at school that teachers are able to make changes and use strategies that reduce stress and increase success.

Each student with an autistic spectrum disorder is so unique that it is hard to make any generalizations. There is no "one size fits all" approach. However the following are examples of some strategies which have been found to be successful in overcoming the specific difficulties explained in the "triad of impairments". When used in conjunction with an understanding of the individual student, teachers should find these strategies make a significant contribution towards improving the learning environment and outcomes.

Sensory Challenges

Sometimes the channels get confused as when the sounds come through as color, sometimes I know something is coming in somewhere but I can't tell right away what sense it is coming through.  [Author unknown]

Many students with autistic spectrum disorders have a different sensory experience of the world. This may involve any number of senses, and the pattern of sensitivities can change across settings and over time.

Students may be over reactive (hypersensitive) to things sensory or under reactive. They may only be able to use or focus on one sensory channel at a time and/or have difficulty identifying which sense is receiving a message. They may have one or more preferred sense that they rely on to give them information on the world.

Autobiographies from people with autistic spectrum disorders have given us a unique insight into these difficulties.

I have caught myself turning off the car radio while trying to read a road sign or turning off the kitchen appliances so that I could taste something. [Author Unknown]

For some students, ordinary sounds and smells, things they see or taste, or being touched will be extremely aversive - and even physically or emotionally painful.

Scratchy petticoats were like sandpaper scraping away at raw nerve endings. [Temple Grandin]

Strategies

  • "Stand in the student's shoes" and use the individual profile to identify the sensory challenges that they may be facing, then work with them to minimize the impact.
  • Use the information from parents and from careful observations to review whether there is anything at school or in the classroom, such as particular resources, sounds or textures, which might be creating aversive experiences.
  • Find a place in the classroom that accommodates any sensory sensitivities e.g., away from the window and harsh lighting if the student is sensitive to light, or away from computer fans if the student is sensitive to noise.
Social Challenges

It was years before I realized that other people are guided by their emotions during most social interactions. For me the proper behavior during social interactions had to be learned by intellect. I became more skilled at social interaction as I became
more experienced. Throughout my life I have been helped by understanding teachers and mentors. [Temple Grandin]

Many people with autistic spectrum disorders can only see the world from their own point of view. Consequently they have difficulty in developing empathy or responding appropriately to the emotional state of others around them. They use the same process for storing social messages as they do factual messages and are therefore unable to generalize what they learn and apply this knowledge to other situations.

I have great difficulty with new social situations if I cannot recall a similar situation to use as a guide. After many years I have learned by rote how to act in a number of different situations. [Temple Grandin]

Strategies

  • It is important to build a relationship with the student, particularly through learning about and sharing the student's interests.

  • Establish regular communication with parents and caregivers. A daily notebook is recommended, particularly when the student is not able to convey messages between home and school. Knowing what is happening in both settings leads to opportunities to communicate with and teach the student.
  • Explain and teach social messages e.g., a range of greetings, which might be appropriate with peers, a teacher, the principal, someone in a shop, at a sports club.
  • Explain the rules of social conduct in a step-by-step manner by explicit teaching of social skills e.g., facial expressions, gestures, personal space, taking turns in conversation and appropriate personal remarks.
  • Ensure the student has the opportunity to balance structured opportunities for socializing and the need for quiet times to avoid "overload".
  • Interest in socializing may be better nurtured by starting with just one other person and building on a shared interest, such as trains or marbles. Sometimes the student may choose to "buddy" with a much older or younger student because they may not provide as many social challenges as someone their own age.
  • Encourage and educate peers to assist the student, either informally or in a more structured setting. This needs to be managed carefully, in partnership with families and others..
Communication Challenges

It was ages before I realized that people speaking might be demanding my attention. [Author Unknown]

Communication is often the major challenge for students with autistic spectrum disorders and those around them. Often it appears the student's only interest in communication is to ensure their needs are met. Acquisition of language skills often follows an unusual sequence and the level of language achieved can vary significantly between students. Some students have limited language. Others may have very sophisticated vocabulary on topics which interest them - but are unable to apply it in other contexts.

Some students can speak well but most of their language may actually be repeating by rote something they have heard from videos, books or other sources. All students with autistic spectrum disorders will have problems using language for social interaction. They process language (particularly oral language) slowly and with difficulty and while they are listening, the words can also trigger a lot of irrelevant information. They tend to have difficulties filtering out the unimportant details which means that by the time they are finally tuned to the same "channel" as the speaker, the moment for responding has passed.

Although the extent of these difficulties will vary, all students with autistic spectrum disorders find verbal information a challenge and have difficulty in following multiple verbal instructions. Teachers can help compensate for this by keeping directions to a minimum, providing clear instructions, and using visual cues.

Strategies

  • Use the student's name to get their attention and wait for a response. Make sure you are within their range of vision - some students find it difficult to make and maintain eye contact. Give clear instructions - "Sit down at your desk," not "Where are you supposed to go?"
  • A series of cues can help the student on to the same "wavelength" before you ask a question e.g., "Yesterday, in English, we talked about the book about Harry Potter. He is a wizard and he has some words he uses to get things. When he wants a light, he says `lumos'. Tell me some other things that he says." Avoid open-ended questions, such as "What did Harry Potter do?" This example would be useful for a student with strong cognitive skills.
  • Cloze techniques and closed questions are often more successful e.g., say "9 x 9 = ?" rather than asking: "What is 9 times 9?"; ask "What is your next class?" rather than "What should you be doing now?"
  • Most students with autistic spectrum disorders have superior visual abilities - they say they "think in pictures". Checklists of regular routines and sequential instructions are often helpful, as are flow charts and mind maps. Visual supports can be referred to over and over again whereas oral language is transient - once it is said, it is no longer available.
  • Take care with non-verbal communication. The student with an autistic spectrum disorder will not recognize the subtle intonations, body language and facial expressions that lend meaning. Similarly they are unlikely to understand the use of irony, sarcasm, idiom or some forms of humor. Explain what idioms mean e.g., "pull up your socks".
  • Consider offering the student the use of an electronic notetaker or a computer for written language tasks to address difficulties with multi-tasking and motor co-ordination problems. It also meets the needs of many students for the words to look perfect.
  • Some students will be using non-verbal communication systems, such as sign language, picture or symbol communication systems, or other facilitated approach. Whatever system has been agreed, the key to success is consistent implementation across all settings.

Curriculum Adaptation

The aim must be not to fit pupils into the curriculum but to see what aspects ... can be used to meet their needs. [Author Unknown]

Students with autistic spectrum disorders often have restricted interests. Some students have only one obsession eg, trains, and they are very difficult to motivate on other topics.

Some subjects such as social studies are particularly difficult because they require students to use perspective and insight, which are skills they may not possess. In other areas, such as science, they may be capable but find skills such as prediction difficult and become very anxious because they cannot bear to be wrong.

Health education may be challenging for students with autistic spectrum disorders, particularly for more able students going through adolescence. Students are prone to low self-esteem and depression and often their lack of social skills are exacerbated at this time.

Strategies

  • Decide and focus on the main objective of the lesson because the student may find it difficult to multi-task e.g., find ways to separate thinking and writing.
  • Use the student's interest to teach curriculum content e.g., there is potential "train math" across the mathematics curriculum. When the student has mastered the concepts, widen the activity to enable the student to generalize the concepts.
  • Use the student's topics of interest as a reward or motivator. Give them relevant projects involving their special interest, which they can do when they have completed some other more demanding activity.
  • Modify activities that require students to take on others' perspectives by making them more concrete. Use role-play and re-enactment with explicit teaching about each person's perspective to build understanding.
  • Design programs that maximize students' strengths to ensure plenty of successful experiences. Be aware of the possible need for periods of scheduled relaxation or reduced participation for the student.
  • In physical education, some students find difficulty with motor co-ordination, learning rules, and in working with large groups. With appropriate support, adaptations can be made to graduate the load on the student. This could be done by first explaining the rules, writing them down, and practicing the skills one-to-one. The activities could then be carried out with a small group. It may take these steps before the student feels they are able to integrate into the class. If difficulties persist, consider offering the student a more individual activity.
  • Understand that some students are good at one sport, such as cricket or soccer, but have little interest in any other physical activity.

Predictability

Reality to an Autistic person is a confusing mass of events, people, places, sounds and sights. There seem to be no clear boundaries, order or meaning to anything. A large part of my life is spent in trying to work out the pattern behind everything. Set routines, times, particular routes and rituals all help to get order into an unbearably chaotic life.  [Therese Joliffe]

A predictable daily environment will result in significant reduction in anxiety and corresponding improvements in behavior. However, there will be inevitable changes of plan and times of transition from one schedule or setting to another. It is crucial to find ways to prepare students for these changes.

Students become very "tuned in" to particular thoughts, ideas and routines and it is difficult for them to shift attention from one activity or setting to the next. Transition between activities, locations and classrooms, between home and school, and between school and other environments needs to be carefully planned and managed to achieve success.

Students with autistic spectrum disorders also usually like logical rules. They may be able to recite all of the class or school rules and become the class "police" by reporting infringements. However, because they lack an understanding of the "why" of the rules, they are often unable to generalize the required behavior appropriately.

Strategies

  • Add clocks to timetables and give the student warning when it is almost time for a change e.g., "look at the clock, in 10 minutes, it will be time for ..." (adjust the amount of warning given to the student's needs). It is a good idea to include any changes from the routine for tomorrow as well as for today. Provide a visual representation e.g., a relevant book, or of the next activity to help them to shift their attention.
  • Try to minimize interruptions once the student is working. If interrupted, they often have difficulty resuming the activity or beginning again.
  • Use of visual strategies such as schedules will help to explain sequences. For example, the class could assemble a book (including photos) or make a video about a new location emphasizing the people, what will happen there, and which things will be the same, particularly things in which the student is interested.
  • Rehearse the situation or let the student see familiar faces in the new location to help the transition. Visual cues, such as photographs of the new environment and people, are useful as part of the preparation. Make sure the student has opportunities to say "goodbye" to the people and the old location.
  • Transition to adult life should include extensive planning and encompass training in areas such as self-care, self-management, social skills, using public transport, functional skills and living in a community. Post-school transition should include ensuring that students have somewhere to live, appropriate advocacy and advice on income support entitlements.
Avoiding Overload

Overload is the single biggest problem for students in the school setting. Positive learning outcomes will depend on the student having sufficient personal space, time to process instructions, time to recover and feel success from their efforts, and appropriate rewards.

Strategies

  • Provide an established place where the student can store and sort through their resources; a safe retreat for times when anxiety or overload occurs.
  • Ensure classrooms are well structured e.g., items are stored in the same place and important parts of the room are labeled. Minimize distracting visual displays, such as objects dangling at eye level in front of the board.
  • Give regular planned breaks. These could incorporate "circuit time" - planned physical activity of the student's choice e.g. walking, running within school grounds, with appropriate support. Have a quiet place where students can go to relax - they could work in the library, at the computer, or have special projects relating to their special interests.
  • A quieter place in the classroom could be created using a workstation with a light removable screen. Students may welcome opportunities to work slightly apart from the rest of the class at particularly agitating times.
  • Keep directions to a minimum and messages to the point - it is easy to "over-explain" which may cause overload.

Behavior Challenges

The most difficult behaviors occur when a student is trying to convey that they are not coping with expectations or the situation. It is usually best to deal with behavior alternatives after the incident has passed.

The key is to explore what has triggered the response. It will almost certainly be related to the student not understanding what is being asked of them, feeling that they are not being understood, or going into "overload".

They are often keen to "get it right" but they don't know what "it" is unless it is explained to them. Programs for behavior change will include targeted teaching of social skills (and assistance to generalize) as well as specific behavior alternatives. To be effective, these new behaviors often need to be scripted and rehearsed. Students are unlikely to generalize new behaviors until they can understand the "why" as well as the "what".

Some students may seem defiant, rude or non-compliant. They will often actually be repeating something they have seen or heard and do not understand that it is not appropriate. Students develop behaviors as a defense for aversive situations. It is therefore better to deal with difficult situations at the initial stage, before the development of more challenging secondary behaviors.

Behaviors such as repetitive flapping, pacing, spinning, singing or laughing usually indicate a need for some respite or other help.

Strategies

  • Observe carefully to identify the triggers of difficult behavior.
  • Keep calm and try to re-direct, rather than confront the behavior. Keep a note in the profile of what works. When students become distressed, they usually need a safe and quiet area to calm down.
  • There may be safety issues - the student might run, hide or hurt themselves or others. Make a contingency plan with parents, professionals and others for these occasions. Ensure that everyone who may come into contact with the student knows what to do at these times.
  • Visual representations may be helpful e.g., "feeling faces" (pictures of different emotions) or colors for the student to recognize their own feelings. During a calm time, script, rehearse and practice alternative behaviors. Teach relaxation techniques and use visual strategies to indicate what they can do if they are "going to red", e.g., to take five deep breaths or move to a quiet area.

The "Invisible Curriculum"

Below are some strategies for non-curricular activities which students often find most difficult:

  • Lunchtime can be a jungle without rules or routines. Students need to have a safe place they can go within the playground and inside the school.
  • Assembly and other large groups of people can be intimidating. Students are often best seated where they can move away if they need to, with supervision and support.
  • Self-management and sequencing is likely to be challenging. Students are often considered lazy but they actually need help - checklists, timetables and visual plans help them work out what to do next.
  • Change creates a lot of anxiety. Give plenty of warning about major changes in routine e.g., relieving teachers.
  • Students often find homework difficult, because they separate school and home into work and relaxation. Consider homework which they can do in natural settings, e.g., practical math objectives, or allow them to do their homework at school.
  • Behaviors and skills often go in cycles - students may even lose the ability to do some things they have previously done. However, when the cycle improves, they can often recover their previous skills and show a noticeable jump in performance. Ask parents how long "challenging" cycles usually last and try to modify expectations of the student.
  • Students with autistic spectrum disorders can become the targets of bullying, largely because they behave differently. It often takes a long time for them to report it, so teachers and parents need to have a plan for students to keep themselves safe, before incidents occur.

Building a Student Profile

Working with a student with an autistic spectrum disorder requires a team approach. It is highly advisable to draw on experiences from parents, families, and other professionals to develop or add to an individual profile. This profile becomes the unique snapshot of the student and is likely to include:

  • Likes/dislikes
  • Skills
  • Communication
  • Social interaction
  • Unusual behavior and triggers
  • Other information, such as
 
 
  • pain or ill health
  • medication
  • sleeping patterns
  • tendency to run away, hide or injure themselves or others
  • toileting
  • who is able to calm him/her
  • family concerns
  • who is/has been involved on their team.

Particular Teaching Skills Required

Teachers who find the most success with students with autistic spectrum disorders will:

  • Have well-structured, predictable programs.
  • Have a quiet and calm manner.
  • Be reflective, adaptable, and work in a team.
  • Already be teaching social and co-operative skills.
  • Show understanding and compassion.
  • Have a sense of humor.
  • Not take comments or behavior personally.
  • Be willing to adapt their style of communication.
  • Be able to understand levels of social communication.
  • Have the imagination to understand and share the mind of someone who lacks imagination.
  • Never be satisfied by how much they know.
  • Accept that progress sometimes brings challenges.
  • Be willing to take on a partnership with parents and  families

 

"Standardized Tests and Students with An Autism Spectrum Disorder"

 

Contributed by Rachel Loftin ~ Indiana Resource Center for Autism-Reporter

 

What are standardized tests?

 

Standardized tests can include a variety of tasks designed to garner knowledge about an individual or group's knowledge, abilities or other traits. These sets of tasks are carefully assessed to ensure that they validly and reliably measure given characteristics. Typically, this process involves administering the test to a sample of individuals who are representative of the population on whom the test will be used. Standardized tests may be administered individually or as a group.

 

A discussion of group administered standardized tests, such as the I-STEP, is certainly important but will not be addressed here. Students' scores on these tests have less impact on intervention and  programming decisions for individual students. Often, group administered tests serve only as a screening procedure for referring students for special education eligibility assessments or, more obviously, for assessing the achievement of the school as a whole. Group administered assessments are rarely adequate for assessing an individual student's academic performance. Because they were developed with the needs of individuals with autism in mind, standardized assessments used to diagnose autism, such as the Autism Diagnostic Observation Schedule (ADOS) (Lord, Rutter, DiLavore, & Risi, 2000), are also omitted from this discussion.

 

What are individually administered standardized tests?

 

Most state and local educational agencies require the use of individually administered standardized tests when making special education eligibility decisions. Selected tests may include intelligence tests (which yield IQ or ability scores), academic tests (which measure achievement), and personality tests (which yield emotional or behavioral information). It is the responsibility of the school psychologist to select which tests will best provide information to address the referral question. Once tests are selected, the school psychologist makes decisions about how to best administer the instrument and interpret the results. Standardized assessment tools have rigid administration guidelines. The obtained scores are only valid if these guidelines are followed.

 

What does this have to do with autism?

 

For students with autism spectrum disorders (ASD), standardized assessments present a host of difficulties. When testing children with ASD, it may be difficult or impossible to adhere to the administration guidelines and still elicit the student's best performance.

 

Tests that are highly dependent on language comprehension, for example, may be biased against students with ASD (Watson & Marcus, 1999). Specifically, tests that require lengthy verbal directions and verbal responses are almost always inappropriate. Even on the performance subtests, receptive language skills are required to understand the directions. The communication deficit faced by all students with ASD puts them at a disadvantage on tests dependent on receptive and expressive language use.

 

Other characteristics of Autism spectrum disorders affect the standardized testing situation. In addition to language skill deficits, a student with ASD may lack other skills required in the testing situation. Students with ASD, regardless of level of functioning, possess deficits in social skills. Standardized tests require some level of social interaction. It may be difficult to perform well on an individually administered assessment without reciprocal social interaction skills. Atypical interests, repetitive behaviors, stereotypic behaviors, disruptive behaviors, and inattention may further complicate the testing situation.

 

Aren't there any alternatives to standardized tests?

 

Yes, school psychologists may choose to administer nonverbal intelligence assessments to students with ASD, rather than altering the standardized administration procedures or foregoing the procedure all together. The Test of Nonverbal Intelligence, 3rd edition (TONI-3) is a valid and reliable alternative that does not require the examinee to read, write, speak, or listen. The Leiter International Performance Scale- Revised (Leiter- R; Roid & Miller, 1997) is another option. The Leiter- R, which does not require the student to use or to understand speech, has few timed items and will not penalize students for slow responses. While these instruments do minimize the communication difficulties that may interfere with obtaining the student's true score, they do require social interaction skills, attention to task, and other appropriate test taking behaviors that may be difficult for students with ASD.

 

At times, it may be possible for the psychologist to forgo the use of standardized tests during the assessment process (i.e., when the school district does not require the use of tests). Observations, interactions with the student, his teachers and parents, and other alternative sources of information may provide valuable information about areas of strength and areas needing improvement that can help guide the intervention and programming process. Even when standardized assessments are used, these additional sources should be included in the assessment.

 

What modifications can psychologists make to accommodate students with ASD when standardized tests are used?

 

Examiner:

Allow time to meet the student before entering the testing session. This may help to alleviate some anxiety and will allow you to better assess needed modifications.

 

Sensory:

Consider the student's sensory needs when conducting an assessment. For example, if he finds printed materials too visually stimulating, cover a portion so fewer problems are visible.

 

Routine:

Testing involves a significant disruption in the student's school day. For students on the autism spectrum, such disruptions can be very distressing. Consider meeting with the student in advance of the testing session to introduce yourself and to explain the upcoming schedule change. If the student uses a schedule, work with the teacher to include the testing session on his daily itinerary.

 

Environment:

If possible, administer the tests in a familiar environment for  the student. Minimize all distractions. Open window blinds, noisy heating vents, unusual smells, and other environmental distractions may have a significant impact on the student's scores.

 

Time:

When possible, allow extra time for the student to finish items.

 

Directions:

Consider the auditory processing delays of students with ASD. Standardized directions are often lengthy and confusing. This can be particularly problematic for children with receptive language difficulties. Make verbal directions as clear and concise as possible. It may be useful to use visual directions or prompts or to allow the student to respond with gestures or signs.

 

Motivation:

To reduce the number of failures in a testing session, frequently' intersperse new and challenging tasks with easier items. This may require administering items out of the standardized order or inserting non test activities within subtests. It may also be helpful to use positive reinforcers to make the testing situation more motivating for the student.

 

Behavior:

Koegel, Koegel & Smith (1997) suggest assessing whether the student exhibits certain behavior that may interfere with the testing situation and then using positive reinforcers to reduce the rate of the interfering behavior. For a student who engaged in the obsessive, self-stimulatory verbal behavior of speaking in a "cartoon-like" voice, Koegel, Koegel and Smith allowed the voice only when responding to the test stimuli.

 

The preceding modifications will likely improve the student's performance. When administration of various intelligence assessments is altered to accommodate for motivation and attention variables, some students who previously scored in the mentally retarded range with standard administration can score in the average or low-average range of cognitive functioning (Koegel, Koegel & Smith, 1997). Employing such strategies will break the standardization of the assessment tool, and you cannot generate standard scores. The psychologist will, however, garner much information about the individual student's strengths and areas for improvement--information that will be crucial in making effective intervention and programming decisions.

 

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * 

 

"Who Are We Working for Anyway? Avoiding Personal Agendas at Meetings To Better Support Individuals Across the Autism Spectrum"

 

Contributed by Kim Davis ~ Indiana Autism Resource Center-Reporter

 

Gloria Smith goes into the conference room for a meeting about her son. As she enters, she is faced with nine professionals sitting  around the table. Each one knows her child and who she is, but she is not sure who they all are. She has talked with the teacher, but has not contacted anyone else. Her son, Adam, is her first child and has autism. At this meeting, Gloria will be asked to discuss his IEP goals, and his behavior plan. Each professional has 10 or 12 other student meetings on their agendas. Time is important to them, but meetings have been run efficiently in the past. The agenda is set and the meeting begins.

 

There are multitudes of meetings surrounding a student with an autism spectrum disorder (ASD) or, for that matter, any disability. Those meetings may include parents, school personnel, therapists, case managers, waiver representatives, other family members, and agency representatives who provide support to the child. Each person attending those meetings may enter the room with a personal agenda in mind.

 

Each may believe his or her ideas are in the best interest of the child. Participants may have a hard time letting go of those ideas, adapting them, or even listening to others. Meetings can become long and involved, and can create tension among all participants. Tensions stem from each person's reactions to the student based on his or her personal experience and perspective. Personal agendas create needless power struggles and personality clashes that often result in the true needs of the person with autism/ Asperger's being forgotten and excluded from any discussion or planning that takes place. Personal agendas cause participants to forget the main focus of the meeting... the student.

 

Personal perspective and experience can impact the manner in which people choose to look at and support individuals. Many times that unique perspective is skewed and does not allow one to see the whole person and what is happening to them. Herb Lovett illustrates this concept in his book, Learning to Listen (p. 130):

 

The lives of people in distress (with disabilities) can take very different directions depending on who is asked for help. A common problem for people providing services is figuring out who to call when they are confused about what to do. For example, if Denise has started' hitting people, any number of things can happen to her depending on who is asked to respond first. A medical practitioner might want to give her a drug, a psychologist might assign a behavior program or a therapy appointment, an occupational therapist might want to assess her styles of sensory integration, her family might want people to punish or placate her the program administrator might want to increase staff time with her, and her service coordinator might want to send her to a residential treatment center out of state. Much of Denise's future will rest on that first telephone call, but how do we know who to call first. Ideally, any one of these key people is comfortable with giving a preliminary opinion and asking for further consultation to help rule out (or in) other contributing causes, but sometimes consultants insist their expertise is the only information needed and will try to 'own' Denise and her situation. Too often professionals work in isolation and rely entirely on a single way of understanding and responding to a behavior. When they proceed to personalize their struggle to 'conquer' a behavior, this narrow focus can lead to the excesses that have killed people in the name of therapy. At this point we recognize controlling and authoritarian ways of working for what they ultimately are. . . inhuman.

 

To create an atmosphere of collaboration and cooperation, people must have open minds and be responsive to multiple positions. Open minds allow individuals to become a team working to create the best possible situation for the child with ASD.

 

Stumbling Blocks

 

There are many areas where schools and parents create tension and confusion during school meetings. Observations from actual meetings between schools and parents illustrate some of the stumbling blocks.

 

For Schools:

 

Meetings:

Meetings are short, rushed, and nothing gets discussed for any length of time. There are also times when the focus of the particular meeting is not clear to all involved. Meetings, whether formal or informal, may not happen often enough to help the team, which includes the parents, understand specific issues surrounding the child.

 

Language:

All professionals use jargon (words related to that profession). Special education is full of jargon. Education professionals use this jargon on a daily basis, and assume that parents understand what is being said. Jargon is often like a foreign language to parents and other non-school personnel.

 

Number of People:

There may be a number of education professionals at the school conference. Most of these professionals know each other and have already discussed the specific student. They may have already formed an "opinion" about the child and family. This sets a didactic versus supportive ('them and us1 tone for the meeting that makes parents uncomfortable and less than trusting about what is being recommended.

 

Assumption of Understanding:

Even if families have been involved with the special education system for a number of years, it does not mean that they always fully understand what is being discussed at the school meeting. Many times parents are not asked if they understand what is being said or recommended, or given the opportunity to ask questions.

 

Parent Training:

Because parent education and training is often not a school priority, the  annual conference may involve a steep learning curve for parents about special education services. Parents who have not received training may not understand the jargon or understand what is being recommended for their child. Yet they are still asked to provide "informed parental consent."

 

Becoming Complacent:

Schools are responsible for coordinating and conducting numerous conferences for students receiving services. Because of time constraints, conferences continue to be conducted in the same manner year after year, and complacency ("the way we have always done it") is often mistaken for efficiency.

 

For Family Members:

 

Meetings:

Parents may not realize the time and effort it takes to coordinate a meeting that accommodates the schedules of teachers, therapists, administrators, paraprofessionals, and parents. When parents fail to show up for their conference and do not contact the school in advance, not only is school staff time wasted but also other students have been denied access to their teacher and/ or therapist.

 

Language:

The family bears a responsibility for understanding the program and services being recommended for their child. The school team may assume that if the family does not ask questions, they must understand and be in agreement. Families who are not informed participants in their child's conference may tend to make last minute changes or demands that create frustration and confusion that circumvent the benefits of the proposed program.

 

Dependency:

It is important for families to take responsibility for making decisions about their child and not pass that responsibility off to the educational staff.

 

Gaining Knowledge:

Parents may be asked by teachers to investigate certain important aspects of their child's learning program by making phone calls, visiting sites, completing paperwork and using other methods. If there is no timely follow through by the family, the school may be unable to proceed with all aspects of the child's program.

 

Last Minute Changes:

Not attending a meeting or not voicing a concern as soon as they occur can create inconvenience and lead to unnecessary conflict. Changing one's mind after the teaching staff have been investigating a certain curriculum, instructional technique, behavior plan, transition process or work site can create frustration, confusion, and anger and also create inconsistencies in the child's program.

 

Becoming Complacent:

Parents as well as teachers can become complacent. Not attending meetings, not asking questions, or letting things go without investigation because it is easier are all forms of parent complacency. Assuming things will get done simply because the school has to provide services is an ineffective way to monitor a child's progress and sends the message that parents are not part of the 'team.'

 

Advocates with Personal Agendas:

Advocates are useful in many instances by helping parents understand situations, as well as assisting in reaching consensus in meetings. However, advocates who come to meetings with personal agendas and hostile attitudes rather than focusing on the needs of the specific student can create unfortunate situations for everyone involved.

 

Threaten lawsuit:

Sometimes tensions become so high that parents want to involve an attorney. The threat of a lawsuit creates incredible stress between and among school staff and family. Honest relationships will suffer and ultimately the child loses.  Although legal alternatives are part of the due process guarantees of special education law, it should be used as a last resort.

 

It can be seen that stumbling blocks are not one sided. Schools and families both can and should work together to help solve problems instead of creating new ones.

 

Actually, school personnel and families each face other challenges that are quite similar. They all share frustrations when it comes to being able to do what is best for the child. The following table lists challenges that both families and schools face. Note the similarities.

 

SCHOOL

FAMILIES

Funding/Money: To pay for

materials, personnel training,

etc.

Funding/Money: To pay

for services, insurance and

to maintain family integrity

Standards: Rules that must be

followed are complicated. There are State and

Federal rules and

regulations to consider.

Standards: Family rules or standards may be

complicated by the views or

opinions of extended family

members.

Class size: How to provide

Individualized and intensive

Attention.

Family Size: How to provide

Individualized and intensive

Attention.

Differing Priorities: Different

Depending On each students needs. Each has different

priorities/needs that may

conflict with the needs/

priorities of Others.

Differing Priorities of Other Family Members: Different depending on

individual and sometimes may

conflict with the priorities/needs

of others.

Environment: Room size,

materials, Interactions.

Environment: House/room size,

Materials, interactions.

Time: Lack of time to do it all.

Time: Lack of time to care for all.

Training: Time and money is an issue to obtain

information.

Training: Time and money is an

Issue to obtain information.

Politics: Differing beliefs and

values.

Family Culture: Differing beliefs

and values.

 

 

Working together to solve problems rather than placing blame requires that everyone realize multiple stressors and challenges faced by all.  Instead of turning meetings into a situation full of barriers and obstacles in which the child is lost, the way to success is to support each other and build on individual strengths. It may be helpful to remember that all people have the best interests of the child in mind regardless of their perspective. Most people would not intentionally do something wrong or bad. Everyone wants what is best, but may have to overcome challenges in their job or family situation to do what is best. They simply may not always have the tools or support to do it.

 

What Can Schools and Parents Do to Enhance Meetings?

 

How can meetings become more comfortable and create more meaningful educational goals and situations for each child? Here are suggestions for schools and parents to consider to help meetings become more productive and supportive of the student with an autism spectrum disorder.

 

Suggestions for Schools:

 

Come to meetings with open minds, instead of with preconceived ideas about the child or others who are attending the meetings. There are always multiple perspectives in any situation whether it is in the classroom, therapy, at home, or in the community. Openness allows everyone to truly hear each other, and to learn about limitations and possibilities in each environment.

 

Establishing a relationship between school and home is a crucial step. This requires a joint effort between the teacher and the pBients. It cannot be one sided. If a positive relationship can be established at the beginning of the school year and includes consistent open minded listening and communication, meetings have a better chance of being productive.

 

Listening to each other is primary. Realize that everyone has something to say from his or her perspective. At the same time, remember that each person's perspective is based on his or her experience and relationship with the student and is valid.

 

Acknowledge issues that the child faces and set priorities for the learning experience.  Work together to see the vision for that particular student. Remember that each year's work should be focused on the ultimate dream or vision for that child.

 

Discuss priorities and see what needs to be  addressed in school as well as at home. Be clear on what behaviors or skills need to be considered so everyone is thinking along the same lines and not spinning their wheels.

 

The teacher should make an effort to contact parents and meet at the beginning of the year as one way to create a joint effort. This informal meeting allows all players to get to know one another and set a positive tone for the beginning of the school year. Reaching out to each other is a wonderful first step.

 

Ensure that parents are included in scheduling meetings and in the planning process by offering to call parents about dates and times prior to letters going out from the school. This can help them understand the schools specific system for arranging meetings.

 

Create a 'safe' environment for families at meetings. Realize the meeting room is filled with professionals who know each other and only one or two family members. Professionals all know the family but often the family does not know all of the professionals. That situation can be quite intimidating.Be sure the family knows ahead of time who will be there and provide introductions at the beginning of the meeting.

 

Be sure parents understand what is being discussed throughout the meeting. Professionals often use jargon during  Meetings and forget families may not use the same language. Be sure parents understand by asking what they have heard. Restate any information that appears confusing to them.

 

Provide parent training both formally and informally beginning in early childhood through the transition years. There is so much for parents to learn about the special education system and the adult service agency system. One meeting a year is not enough to truly grasp a situation. Remember that reading material is not always the best option for sharing information. Phone calls, informal meetings, home visits, or formal group instruction or monthly meetings may ultimately prove fruitful.

 

If teaching strategies or behavior support plans are not working or achieving desired outcomes, they need to be refined. Even if things have "always been done this way", it may be best to revisit common practices and make adaptations.

 

Finally, remember that the dreams that families have for their child may be different from those of the school staff. It is important for the school staff to hear family wishes, and then try not to push their views and values onto the family. Professionals can try to learn to value what the family dreams and help them meet those dreams or augment them to support the child in the best possible manner.

  

Suggestions for Families:

 

Families should share all necessary information about their child including information about medications, diagnosis, and illnesses. If your child is on medications be sure to tell school staff so they can be alert for side effects or changes in behavior.

 

Share the dreams for the future life of your son or daughter with the team. Opening up, and being totally honest is difficult for anyone. It is often more difficult when sharing with a group of professionals. Yet, sharing dreams and hopes, as well as fears, allows the team to understand family perspectives better. It creates a unique relationship that may increase the desire for'

working together toward those dreams. Other team members may be parents and also have dreams for their children; therefore they can empathize and understand the parent perspective better.

 

When families do not understand what is being discussed, ask questions during the meeting. Calling, e-mailing or writing to teachers at school can also dissolve any confusion or miscommunication that may take place. Realize that during the school day it is often challenging for teachers to make or take phone calls. It may be necessary to set up a phone date in order for discussion not to be rushed.

 

Try to understand that your child's school may not always have the best PLAN, but try to start on common ground then adapt the plan as needed. Know that sometimes the best PLAN may fail. After all, if the job of teaching students with autism or other disabilities was easy, anyone could do it and no meetings would be necessary. Often teachers need to try several strategies before finding one that works. It is frustrating for them, just as much as it is frustrating for the student and family. Allow them to try different techniques with the students and realize there may be some trials before there will be success. We all learn through our mistakes.

 

Avoid threats or lawsuits if possible. As stated, due process is a legitimate option and available for a reason. However, a lawsuit mayor may not help. While it is important to advocate for your child, there may be better options than a lawsuit. Exploring mediation, parent advocacy, or informal meetings can be alternatives. Establishing a relationship with the teacher at the very beginning of the year and maintaining consistent contact can allow a more open and consistent dialogue between home and school.

 

Finally. it would be wonderful for both the family and school staff to make and to receive calls or messages with a positive content. So often the only time contact is made, other than to set a meeting date, is when some crisis has occurred. Sharing positive information can help in maintaining more trust and honest relationships between home and school.

 

The ultimate goal of collaborative meetings should not be "How will you make this work or happen: but instead it should be how can WE make this work together!!! When parents and school personnel work together as a team, with respect and consideration for each other, severe disagreements are greatly minimized and ultimately, the child is the winner!

 

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * 

 

 

Assessment

Addressing Student Problem Behavior

Autism Research Institute's Form E-2 Check List and Childhood Autism Rating Scale (CARS)

Autism Treatment of Evaluation Checklist (ATEC)

Functional Behavioral Assessments: What, Why, When, Where, and Who? at Wrightslaw Website.

Guidance on Functional Behavioral Assessments for Students with Disabilities

Resources and Research on Assessment


************************************************************


Assessment/Diagnostic Tools


Comprehensive assessment and evaluation set the foundation for the overall quality and appropriateness of final recommendations in an individualized family services plan (IFSP), an individualized program plan (IPP), and an individualized education program (IEP) that may include transition services as appropriate.

The success of an individualized early intervention and education program begins with accurate assessment. A thorough developmental assessment not only identifies the child's strengths and needs from which realistic teaching objectives are designed, but also establishes a baseline against which measures of progress can be made. More important, preintervention assessment data, when interpreted by experienced professionals and educators and shared with parents, shape parents' expectations about the course and outcome of treatment.

The stress of receiving a confirmed diagnosis of autism and possibly mental retardation complicates the task of communicating developmental information. Nevertheless, accurate assessment data, presented to parents in an objective, sensitive, and caring manner, is indispensable preparation for contemplating an early intervention or educational program. It is the assessment team's responsibility to gather, present, and openly discuss relevant information needed by parents of a child diagnosed with ASD. Professionals are responsible for sharing the information with parents to reach a mutual and realistic expectation of instructional outcomes as well as an understanding of alternative approaches.

Assessment and intervention are ongoing processes; they require the information gained to be ontinuously fed back into the system to influence the intervention plan and, ultimately, the outcome.

Collaborative Aspects of Comprehensive Assessment

Parents are encouraged to actively participate in the assessment process to assure that any assessment is reflective of the child's functioning within the family setting or from the parent's perspective. Agencies collaborate in the assessment process to reduce duplication, cost, and stress on the child and family. Participating agencies are encouraged to jointly plan the assessment process, which determines program eligibility and service needs. Results of the assessment are integrated into the IFSP, IPP, and/or IEP. The need for ongoing reassessment is determined by the collaborative team's review of progress (or suspected lack of progress) in achieving individual program objectives and curriculum goals.

Assessment Domains

Assessment domains may differ as a result of an individual's age, developmental level, diagnosis, and areas of need. The domains may include, but are not limited to, the following:

-Cognition/developmental levels
-Social/emotional skills
-Sensory regulation
-Motor skills
-Communication skills
-Play/leisure-time activities
-Preacademic/academic skills
-Prevocational/vocational skills
-Self-help, independent-living skills
-Community-based skills
-Behavior
-Methods of Assessment

Methods of assessment are individualized based on age, developmental level,diagnosis, and areas of need and may include:

-Standardized assessment tools
-Developmental assessment approaches
-A developmental history
-A medical history
-A family interview
-A review of records
-Natural and structured observations in multiple settings
-Functional analysis of behavior
-Documentation of symptomology
-Family assessment


Diagnostic and Assessment Instruments Appropriate for Use with Children With Autistic Spectrum Disorders


The following instruments are used by educators, clinicians, and researchers to assess children suspected of, or previously diagnosed with, a pervasive developmental disorder. These instruments are used to measure specific dimensions of a child's development,environment, or family. The instruments listed provide measures of development in different domains of functioning. Rate of change in those domains is sometimes used as a baseline or as a follow-up measure of developmental progress or response to educational programming. The following list of assessment instruments represents a sample of instruments most familiar to professionals working with children with autism.

Diagnostic Assessment

Autism Diagnostic Interview - Revised

The Autism Diagnostic Interview-Revised (ADI-R) is a semi-structured, investigator-based interview for caregivers of children and adults for whom autism or pervasive developmental disorders is a possible diagnosis.

A standard diagnostic interview is conducted at home or in a clinic. The ADI-R is considered by some professionals in the field as a measure of high diagnostic accuracy. It takes several hours to administer and score. The ADI-R is recognized as one of the better standardized instruments currently
available for establishing a diagnosis of autism. It is a semi-structured interview administered to subjects' caregivers which determines whether or not an individual meets the Diagnostic and Statistical Manual of Mental Disorders (3rd ed., revised) criteria for autism. The assessment begins with a home visit by a therapist who interviews the child's parents. A home visit provides a chance to meet the child and to get a sense of the parents' priorities. This interview may be scheduled as part of the in-clinic assessment.

Prelinguistic Autism Diagnostic Observation Schedule

The Prelinguistic Autism Diagnostic Observation Schedule (PL-ADOS) is a semi-structured observation scale for diagnosing children who are not yet using phrase speech and who are suspected of having autism. The scale is administered to the child with the help of a parent. This instrument provides an opportunity to observe specific aspects of the child's social behavior, such as joint attention, imitation, and sharing of affect with the examiner and parent. PL-ADOS scores are reported to discriminate between children with autism and children with nonautistic developmental disabilities. The resulting
diagnostic algorithm is theoretically linked to diagnostic constructs associated with International Classification of Diseases (10th revision) and DSM-IV criteria for autism.

Childhood Autism Rating Scale

The Childhood Autism Rating Scale (CARS) was developed by the Treatment and Education of Autistic and Related Communication Handicapped Children (TEACCH) program staff in North Carolina to formalize observations of the child's behavior throughout the day. This 15-item behavior-rating scale
helps to identify children with autism and to distinguish them from developmentally disabled children who are not autistic. Brief, convenient, and suitable for use with any child older than two years of age, the CARS makes it much easier for clinicians and educators to recognize and classify autistic children. Developed over a 15-year period, with more than 1,500 cases, CARS includes items drawn from five prominent systems for diagnosing autism. Each item covers a particular characteristic, ability, or behavior.

After observing the child and examining relevant information from parent reports and other records, the examiner rates the child on each item. Using a seven-point scale, he or she indicates the degree to which the child's behavior deviates from that of a normal child of the same age. A total score is computed by summing the individual ratings on each of the 15 items. Children who score above a given point are categorized as autistic. In addition, scores falling within the autistic range can be divided into two categories: mild-to-moderate and severe. Professionals who have had only minimal exposure to autism can easily be trained to use CARS.

Autism Behavior Checklist

The Autism Behavior Checklist (ABC) is a general measure of autism. It is not as reliable as the CARS or ADI-R. Correlations between the ABC and CARS ranged from 0.16 to 0.73 in a study by Eaves and Milner (1993). The CARS correctly identified 98 percent of the autistic subjects; it identified 69 percent of the possibly autistic as autistic. The ABC correctly identified 88 percent of the autistic subjects, while it identified 48 percent of the possibly autistic as autistic.

Checklist for Autism in Toddlers

The Checklist for Autism in Toddlers (CHAT) is a screening instrument designed to detect core autistic features to enable treatment as early as eighteen months. The most effective treatment currently available for autism is early educational intervention, beginning as soon as possible after a child's diagnosis. Unfortunately, intervention rarely begins before the age of three years because few autistic children are diagnosed before they reach preschool age. CHAT offers physicians a means of diagnosing autism in infancy so that educational programs can be started months or even years before most symptoms become obvious. CHAT should not be used as a diagnostic instrument, but it can alert the primary health professional to the need for an expert referral.

Real Life Rating Scale

The Real Life Rating Scale (RLRS) is a scale used to assess the effects of treatment on 47 behaviors in the motor, social, affective, language, and sensory domains among autistic persons. The RLRS is appli- cable in natural settings by nonprofessional raters, is rapidly scored by hand, and can be repeated frequently without affecting inter-observer agreement.

Pervasive Developmental Disorder Screening Test

The Pervasive Developmental Disorder Screening Test (PDDST) is designed to be administered in settings where concerns about possible autistic spectrum disorders arise. Different "stages" of the PDDST correspond to representative populations in (a) primary care clinics; (b) developmental clinics; and (c) autism clinics. The PDDST is designed as a screening test and is a parent report measure. As such, it does not constitute a full clinical description of early signs of autism but does reflect those early signs that have been found to be reportable by parents and correlated with later clinical diagnosis.

Stage One

Primary care screening is designed for use in primary care pediatric settings where the vast majority of parents express initial complaints about symptoms that prove to be significant in diagnoses of ASD.

Stage Two

Developmental disorders clinic screening is designed for use in developmental clinics where children are often first assessed for possible developmental disorders.

Stage Three

ASD screening is designed for use in specialty clinics for children suspected of ASD.

Autism Screening Instrument for Educational Planning (2nd ed.)

The Autism Screening Instrument for Educational Planning (2nd ed.) (ASIEP-2) is a major revision of one of the most popular individual assessment instruments available for evaluating and planning for subjects with autistic behavior characteristics. Standardized and researched in diagnostic centers throughout the world, ASIEP-2 uses five components to provide data on five unique aspects of behavior with individuals from eighteen months through adulthood. The components of the ASIEP examine behavior in five areas: Sensory, Relating, Body Concept, Language, and Social Self-Help. The ASIEP-2 samples vocal behavior, assesses interactions and communication, and determines learning rate. In combination, ASIEP-2 subtests provide a profile of abilities in spontaneous verbal behavior, social interaction, educational level, and learning characteristics.

Diagnostic Checklist for Behavior-Disturbed Children (Form E-2)

The Form E-2 Diagnostic Checklist (Rimland, 1971), developed at the Institute for Child Behavior Research, was proposed as an assessment instrument that differentiates between cases of "classical" autism and a broader range of children with "autistic-like" features. Questions on Form E-2 reference behaviors in children between birth and age six years. This questionnaire is completed by the child's parents. Form E-2 is not designed to determine whether or not a child is autistic for the purposes of being admitted to an educational or rehabilitative program.

Gilliam Autism Rating Scale

Designed for use by teachers, parents, and professionals, the Gilliam Autism Rating Scale (GARS) (Gilliam & Janes, 1995) helps to identify and diagnose autism in individuals ages three through twenty-two years and to estimate the severity of the problem. Items on the GARS are based on the definitions
of autism adopted by the DSM-IV. The items are grouped into four subtests: stereotyped behaviors, communication, social interaction, and developmental disturbances. The GARS has three core subtests that describe specific and measurable behaviors.

An optional subtest (Developmental Disturbances) allows parents to contribute data about their child's development during the first three years of life. Behaviors are assessed using objective, frequency-based ratings. The entire scale can be completed in five to ten minutes by persons who have knowledge of the child's behavior or the greatest opportunity to observe him or her. Standard scores and percentiles are provided.

Developmental Assessment

Psychoeducational Profile-Revised (PEP-R) offers a developmental approach to the assessment of children with autism or related developmental disorders. It is an inventory of behaviors and skills designed to identify uneven and idiosyncratic learning patterns. The test is most appropriately used with children functioning at or below the preschool range and within the chronological age range of six months to seven years. The PEP-R provides information on developmental functioning in imitation, perception, fine motor, gross motor, eye-hand integration, cognitive performance, and cognitive verbal areas. The PEP-R also identifies degrees of behavioral abnormality in relating and affect (cooperation and human interest), play and interest in materials, sensory responses, and language.

The PEP-R kit consists of a set of toys and learning materials that are presented to a child within structured play activities. The examiner observes, evaluates, and records the child's responses during the test. There are 131 developmental and 43 behavioral items on the PEP-R. The total time required to administer and score these items varies From 45 minutes to 1.5 hours. Because it is not a test of speed, variations in total testing time depend on the child's levels of functioning and any behavior management problems that arise during the testing situation. At the end of the session, the child's scores are distributed among seven developmental and four behavioral areas. The resulting profiles depict a child's relative strengths and weaknesses in different areas of development and behavior.

The Developmental Scale tells where a child is functioning relative to peers. The items on the Behavioral Scale have the separate, but related, assessment function of identifying responses and behaviors consistent with a diagnosis of autism. The PEP-R provides a third and unique score called emerging. A response scored "emerging" is one that indicates some knowledge of what is required to complete a task, but not the full understanding or skill necessary to do so successfully.

The Adolescent and Adult Psychoeducational Profile (AAPEP) extends the PEP-R to meet the needs of adolescents and adults.

Southern California Ordinal Scales of Development

The Southern California Ordinal Scales of Development (SCOSD), which is available from Western Psychological Services, was developed by the California Department of Education, Diagnostic Center in Southern California (1985). The developmental scales of cognition, communication, social affective behavior, practical abilities, gross motor, and fine motor abilities are based on two fundamental principles. First, they draw extensively on the developmental theories of Jean Piaget. Each scale is
divided according to the levels and stages that Piaget describes in his writings on human development. Second, the SCOSD incorporates assessment techniques that aim to minimize the constraints of traditional, standardized ability testing.

When possible, the examiner is encouraged to observe the child in his or her natural environment, using materials that are readily available and familiar. In interpreting the results of assessment, the examiner arrives at a total picture of the child's abilities in terms of the particular developmental scale.

The SCOSD is criterion-referenced rather than norm-referenced. Assessment procedures are flexible, rather than fixed, and the scoring system takes into account the quality as well as the quantity of responses.

Developmental Play Assessment Instrument

The Developmental Play Assessment Instrument is an instrument used to assess the play development of children with disabilities relative to the play of nondisabled children. The developmental quality of toy play is evaluated according to the level of pretend play and the frequency and variety of play activities within the level identified.

Brigance Inventory of Early Development is criterion-referenced rather than norm-referenced. While useful for assessment purposes, its value is in identifying instructional objectives, serving as a guide for measuring those objectives, and providing an ongoing tracking system. The Brigance Inventory
is intended for informal assessment of several aspects of child development and is for children functioning at developmental levels from birth to seven years of age. Major areas assessed include general knowledge and comprehension, speech and language, preacademics, self-help, and psychomotor skills. Within these major areas, there are 98 subtests of sequenced developmental skills.

The Brigance Inventory permits different administrations to be used, such as observation, direct testing of the child, or reports from caretakers, child-care workers, or teachers. To elicit the child's maximum performance, clinicians are encouraged to allow children to respond in any possible fashion, such as pointing, eye localizations, or verbalizing. Clinicians are encouraged to adapt materials to best meet the needs of the child to get a response.

Reliability and validity measures of the Brigance Inventory are limited, as is true of most criterion-referenced instruments. There is no reported reliability or validity data in the manual. The value of the Brigance Inventory lies in its ability to identify a child' s pattern of strengths and weaknesses in several areas. The items are representative of a curriculum appropriate for an early childhood program and thus are easily linked to instructional planning and intervention. Another benefit of relating items to teaching and planning is that repeated assessments with the Brigance Inventory can pinpoint areas
of gains and losses. The obvious caution here is to avoid teaching to the test since the items are so very specific.

Adaptive Assessment

Vineland Adaptive Behavior Scales (VABS) comes in three forms varying in degree of detail and proposed setting. There is the Survey Form, the Expanded Form, and the Classroom Edition. The VABS is administered by interviewing the child's parents, teachers, or care providers. The scales range in age from birth to nineteen years. Raw scores from communication, daily living skills, socialization, motor skills, and maladaptive behaviors are converted to standard scores with a mean of 100 and a standard deviation of 15. The Adaptive Behavior composite score includes the domains noted above and reflects overall adaptive ability.

Questions have been raised about the scales'standardization and the accuracy of standard scores across the age range. One problem is lack of uniformity of scores across various ages. Depending upon the child's age, means and standard deviations differ. Thus, comparing the same child's performance on reassessment is compromised, as is the accuracy of any composite score. Differences among domain scores may be more apparent than real because of variable scores. There is considerable overlap among the various domains with both communication and daily living domains containing questions about the child's language ability.

Communication Assessment

Sequenced Inventory of Communication Development-Rev. ed. (SICD- R) tests a variety of early communication skills, giving a broad perspective of the semantic, syntactic, and pragmatic aspects of a child's receptive and expressive language. It combines parental report items with behavioral items that incorporate materials and methods to keep children's attention. The test provides for assignment of communication ages and for determining initial goals in communication programming.

The Nonspeech Test for Receptive/Expressive Language is designed to provide a systematic way for observing, recording, and summarizing the variety of means in which an individual may communicate. This tool determines a person's skills as a communicator, whether speech or nonverbal means are used for communication. It allows for easy development of IEP objectives from the test response forms.

The Assessing Semantic Skills Through Everyday Themes (ASSET) is a test of receptive and expressive semantics for preschool and early elementary children. It is built around six common themes, which represent aspects of everyday life that are familiar and important to preschool and early elementary children. Test items emphasize vocabulary that is meaningful and relevant to the experiences of young children. There are five receptive and five expressive subtests, which are designed to elicit responses by questions or directions from the examiner, that refer to the illustrations in the picture stimuli book. Nonverbal performances on receptive vocabulary tasks can be compared to verbal responses on the expressive subtests. This evaluation instrument provides standardized analyses of receptive, expressive, and overall vocabulary abilities.

The Expressive One-Word Picture Vocabulary Test (Rev. ed.) measures the child's ability to verbally label objects and people. The child must identify, by word, a single object or a group of objects on the basis of a single concept. This is a standardized test that provides age equivalents, standard scores, scaled scores, percentile ranks, and stanines.

The Receptive One-Word Picture Vocabulary Test (Rev. ed.) obtains an estimate of a child's one-word hearing vocabulary based on what the child has learned from home and school. It provides information about the child's ability to understand language. This is a standardized test that provides age equivalents, standard scores, scaled scores, percentile ranks, and stanines.

The Clinical Evaluation of Language Fundamentals - Preschool (CELF-P) is a tool for identifying, diagnosing, and performing follow-up evaluations of language de6cits in preschool children. It assesses receptive and expressive language ability, including semantics, morphology, syntax, and auditory memory. It is standardized for ages three years and zero months through six years and eleven months.

The ECOScales Manual provides a model for evaluating the interactive and communication skills of preconversational children and their caregivers. The model is designed for both program planning and progress monitoring as well as for determining the child's performance. The ECOScales assessment approach assumes the adult is an active participant in the child learning to communicate. The ECOScales is an interactive approach which charts development from early play to conversations. Five levels of interactive development and delays are considered. The ECOScales Manual identifies disorders, not in terms of linguistic performance alone, but in terms of interaction skills and their role in fostering communication.

The Peabody Picture Vocabulary Test (Rev. ed.) (PPVT-R) measures an individual's receptive vocabulary for standard American English. It measures one facet of general intelligence: vocabulary. It takes a relatively short period of time to administer and may be used as an initial screening device.

The Reynell Developmental Language Scales is a language test for children from one to seven years. The Reynell measures comprehension (receptive language) and expressive language and is widely used with language-delayed children. This test will be given to all subjects at intake, at 12 months into treatment, at 24 months into treatment, and at follow-up to provide an index of the rate of growth in language functioning.

The Preschool Language Scale (3rd ed.) (PLS-III) has two standardized subscales, Auditory Comprehension and Expressive Communication, which allows evaluation of a child's relative ability in receptive and expressive language. When comparing scores, one can determine whether deficiencies are primarily receptive or expressive in nature or whether they reflect a delay or disorder in communication. Precursors of receptive skills (with a focus on attention abilities) and precursors to expressive skills (with a focus on social communication and vocal development) are also assessed. Supplemental measures include the Articulation Screener, the Language Sample Checklist, and the Family Information and Suggestions Form.

Bayley Scales of Infant Development (2nd ed.) (BSID-II) allows diagnostic assessment at an earlier age. The BSID-II was designed to identify children who have a cognitive or motor delay and suggests needed forms of intervention. The BSID-II has been renormed on a stratified random sample of 1,700 children (850 boys and 850 girls) ages one month to forty-two months, grouped at one-month to three-month intervals, closely paralleling the 1988 U.S. Census statistics on the variables of age, sex, region, race and ethnicity, and parental education. The Behavior Rating Scale (formerly the Infant Behavior Record) was revised in both structure and content. The Mental Scale yields a normalized standard score called the Mental Development Index, evaluating a variety of abilities, including sensory-perceptual acuities, discriminations, and response acquisition of object constancy memory, learning, and problem solving, vocalization, beginning verbal communication, mental mapping, complex language and mathematical concept formation. The Motor Scale assesses degree of body control, large-muscle coordination, fine motor manipulatory skills, postural imitation, and motor quality.

The Behavior Rating Scale provides information to supplement the Mental and Motor scales. The 30-item scale rates the child's relevant test-taking behaviors and measures attention, arousal, orientation, engagement, and emotional regulation.

The Mullen Scales of Early Learning (MSEL) assesses early cognitive ability and motor development. This new standardized version of the MSEL combines the old Infant Mullen and the Preschool Mullen into one instrument that allows comprehensive assessment of language, motor, and perceptual abilities for children of all ability levels. Test ages range from birth to five years, eight months. This revised and updated version includes five additional scales, including Gross Motor, Visual Reception, Fine Motor, Expressive Language, and Receptive Language. Test scores provide an objective foundation for intervention planning and serve as baseline data for a continuum of appropriate teaching methods and interactions. The MSEL evaluates visual and language abilities at both receptive and expressive levels and provides a framework in which to examine infant development and interactional patterns. This test identifies uneven learning patterns and children who need support (visual and auditory) for weaknesses in reception and memory and indicates when input should be reduced because of sensory overload. The scale helps facilitate appropriate parent/child interactions, and assists in identifying the instructional approach, which links the ISP to the IFSP.

The publisher reports that it takes 15 minutes to assess a one-year-oldusing all five scales; 25-35 minutes to assess a three-year-old; and 40-60 minutes to assess a five-year-old. Mullen ASSIST computer software is available for scoring and report writing.

Early Coping Inventory is an observation instrument to assess the coping behaviors that are used by infants and toddlers in everyday living. Analysis of a child's scores provides information about level of coping effectiveness, style, and strengths and weaknesses. The inventory has 48 items divided into three categories: sensorimotor organization, reactive behavior, and self-initiated behavior. It is designed to be used for children between ages four to thirty-six months, or for older children who function within this developmental range.

Standardized Tests of Intelligence

Wechsler Preschool and Primary Scale of Intelligence (Rev. ed.) (WPPSI-R) is a frequently used intelligence test for children from three to seven years of age. It represents the gold standard for assessment for a multitude of situations. In addition, use of the WPPSI-R during preschool years dovetails smoothly with use of the Wechsler Intelligence Scale for Children (Rev. ed.) as children enter school and require reassessment.

The WPPSI-R contains the 11 original WPPSI subtests and an additional performance subtest, Object Assembly, which consists of colorful, appealing puzzles. Animal Pegs (formerly Animal House) and Sentences are now optional subtests. A design-recognition task was added to the Geometric Design subtest so that it now has two parts: Visual Recognition/Discrimination for younger children and Drawing of Geometric Figures for older children. The WPPSI-R provides norms for 17 age groups divided by three-month intervals from three years through seven years, three months. The norms are based on a standardization sample of 1,700 children stratified by age, race, sex, geographic region, parents' education, and parents' occupation. Subtest scaled scores are expressed as standard scores with a mean of 10 and standard deviation of 3.

Wechsler Intelligence Scale for Children (3rd ed.) while retaining the basic structure and content of the revised edition, has updated normative data, improved items and design, and an added optional subtest. The WISC-III includes numerous additional statistical tables and relevant validity information. The WISC-III continues Wechsler's concept of intelligence as a global but multifaceted entity that can be inferred from a child's performance on a series of tasks. It is valuable for psychoeducational assessment, diagnosis, placement, and planning. WISC-III can be used to diagnose exceptionality among school-aged children and has a strong place in clinical and neuropsychological assessment and in research. Like the WPPSI-R, the WISC-III is widely used and generally regarded as the best standardized measure of intelligence.

The Differential Ability Scales (DAS) measures overall cognitive ability and specific abilities in children and adolescents. It is better suited for intellectually higher-functioning children with autism. The DAS assesses multidimensional abilities in children ages two years and six months to seventeen years and eleven months. It is administered individually and takes 45 to 65 minutes for the full cognitive battery. The achievement test takes 15 to 25 minutes to administer.

The seventeen cognitive and three achievement subtests yield an overall cognitive ability score and achievement scores. The three achievement subtests are Basic Number Skills, Spelling, and Word Reading. The DAS allows the examiner to explore differences among the various cognitive abilities as well as differences between cognitive abilities and academic achievement. Colorful, manipulative materials enhance the testing for preschoolers. The Preschool Level measures reasoning as well as verbal, perceptual, and memory abilities and is suitable for ages two years and six months to six years. The school-age level contains a variety of tasks suitable for children ages seven years to 17 years and 11 months.

The Stanford-Binet Intelligence Scale (4th ed.) (SBIS-IV) has a new format and scoring system, mostly new items, and a new national standardization. The SBIS-IV is for individuals ages two years to adult. It provides scores in four areas: Verbal Reasoning, Abstract and Visual Reasoning, Quantitative Reasoning, and Short-Term Memory; and a Composite Score that is equivalent to the Wechsler Scales Full Scale IQ. Standard scores with means of 100 and standard deviations of 16 are available for each of the four areas. The areas are composed of one or more subtests; the exact subtests administered depend on the individual's age and his or her performance. The subtests have a mean of 50 and standard deviation of 8.

Tests of Nonverbal Intelligence

Columbia Mental Maturity Scale (3rd ed.) (CMMS-III) is useful in evaluating children who have sensory or motor defects or who have difficulty speaking and, to some extent, reading. The test does not depend on reading skills. It provides age deviation scores (standard scores) for chronological ages between three years and six months and nine years and eleven months. The age deviation scores range from 50 to 150, with a mean of 100 and standard deviation of 16. A second score, the Maturity Index, indicates the standardization age group most similar to that of the child in terms of test performance.

The task is to have the child select the one drawing that is different from the others on each card. However, autistic children may have difficulty understanding the concept of pointing to the "one that does not belong." This untimed test usually takes 15 to 20 minutes to administer and is simple to score. The child is required to make perceptual discriminations involving color, shape, size, use, number, missing parts, and symbolic material. Tasks include simple perceptual classifications and abstract manipulation of symbolic concepts. The CMMS-III appears to measure general reasoning ability, although there is some evidence that it may be more of a test of the ability to form and use concepts than a test of general intelligence.

The scale provides a means for evaluating intelligence through the use of non- verbal stimuli. It can be useful as an aid in evaluating children with disabilities and may be less culturally loaded than some other intelligence tests. However, the scores obtained on the CMMS-III are not interchangeable with those on the SBIS-IV, WISC-R or WPPSI-R.

The Merrill-Palmer Scale of Mental Tests (MPSMT) is for children from one year and six months to six years. The MPSMT is widely used as a nonverbal test instrument for assessing visual-spatial skills and can be used for young autistic children at the beginning of intervention, at 12 months, and at 24 months into the intervention. Visual-spatial skills are an area of strength for many children with autism. The MPSMT enables a more detailed assessment of visual-perceptual functioning than is provided by the BSID-II or WPPSI-R.

The Leiter International Performance Scale (LIPS)intelligence independent of language ability for children age three years and older. Administration time is 30 to 45 minutes. Because directions are communicated by pantomime, the LIPS is widely used with non-English-speaking subjects, illiterate or disadvantaged individuals, and those with speech, hearing, or other medical disabilities. The LIPS provides activities which foster attention and allow observation of a student's approach to problem solving and his or her emotional reactions. The subject matches blocks with corresponding characteristic strips positioned in the sturdy wooden frame. Level of difficulty increases at each age level. The LIPS yields a Mental Age and IQ data. The LIPS scale has four tests at each year level. The scale has a number of limitations, including uneven item difficulty levels, outdated pictures, a small number of tests at each year level, and use of the ratio IQ. The most serious difficulties are the outdated norms, inadequate standardization, and lack of information about the reliability of the scale for various age levels. Because the norms underestimate the child' s intelligence, Leiter recommended that five points be added to the IQ obtained on the scale.

While the LIPS has a number of limitations, it does merit consideration as an aid in clinical diagnosis (rather than as a measure of general intelligence), especially in testing language-handicapped children who cannot be evaluated by the SBIS-IV, WISC-III, or WPPSI-R. However, although the test may be less culturally loaded than some other intelligence tests, there is no evidence that it is a culture fair measure of intelligence.

The Test of Nonverbal Intelligence (2nd ed.) (TONI-II) is a language-free measure of cognitive ability. It measures abstract figural problem solving in children age five years and older. Administration time is 10 to 15 minutes. The TONI-II contains 55 problem-solving tasks that progressively increase in complexity and difficulty. Each item presents a set of figures where one or more of the items is missing. The child with autism must be able to examine the differences among the figures, identify problem solving rules that define the relationship, and select a correct response.

The TONI-II is a languag measure of intelligence, aptitude, and reasoning. Because the subject does not have to read, write, speak, or listen during test administration, it is ideal for assessing (a) individuals
with speech, language, or hearing impairments; (b) those who have suffered brain injury or have other academic handicaps; and (c) those who do not speak English. Two equivalent forms make the TONI-II ideal for situations where both pre- and postmeasures are desirable.

The TONI-II yields quotient scores and percentile ranks. It was normed on more than 2,500 subjects. Reliability and validity data are provided for normal, mentally retarded, learning disabled, deaf, and gifted subjects.

Academic Screening

The Wide Range Achievement Test 3 (WRAT3) measures reading, spelling, and arithmetic in persons from five to seventy-four years old. Two equivalent forms make pre- and post testing possible. The test takes 10 to 15 minutes to administer. The WRAT3 provides a good method for measuring basic academic skills in children who perform below their peers.

Behavior Assessment

The Achenbach Child Behavior Checklist (ACBC) is for children four to eighteen years old and is completed by an adult informant. It has two major scales - externalizing and internalizing behaviors - each of which has four subscales. It has been used as a follow-up measure. The child's primary caregiver (in most cases, the client's mother) serves as the informant. There is a separate version of this test developed for teachers, the Teacher Report Form.

The Analysis of Sensory Behavior Inventory (Rev. ed.) (ASBI-R) is designed to collect information about an individual's behaviors as they are related to sensory stimuli. Six sensory modalities are assessed: vestibular, tactile, proprioceptive, auditory, visual, and gustatory-olfactory. Ratings can be made about both sensory-avoidance and sensory-seeking behaviors within each modality. Information obtained from this tool may be helpful in completing a functional analysis of behavior and in designing effective intervention strategies, including accommodations and reinforcers for the individual.

Sensory processing differences are frequently seen in persons with severe disabilities and problem behaviors. Analyzing these differences may assist in understanding puzzling behaviors which have proven difficult to change. Interventions which accommodate to individual differences frequently result in improved adaptive functioning.

The Personality Inventory for Children (PIC) is a true-false questionnaire for children ages three to sixteen years which consists of thirteen clinical and three validity scales. The PIC is administered to parents. The scales measure areas of emotional disturbance in children, such as anxiety, withdrawal, depression, and reality distortion. This inventory can be completed by the child's primary caregiver.

Family Assessment

These measures focus primarily on aspects of the family. These instruments are used to determine pre- and posttest changes and are not specifically used to tailor the course of individual programming for a family or child.

The Behavioral Vignettes Test (BVT) is a multiple-choice test (20 items) used to evaluate a parent's, school therapist's, or special education teacher's functional knowledge of behavioral principles. The BVT can be used as a pre and posttest measure of change in persons undergoing training in teaching self-help, social, and play skills.

The Parenting Satisfaction Scale (PSS) facilitates clinical assessment of parent-child relationships. The PSS assists in identifying a troubled parent-child relationship and can be useful in assessing a parent's response to the effect of intervention and, if suggested, conducting family therapy. The PSS is a 45-item standardized assessment of parents' attitudes toward parenting. Scores derived from this scale allow a clinician or researcher to define, compare, and communicate levels of parenting satisfaction in three domains: (a) Satisfaction with the spouse's or ex-spouse's parenting performance in the parenting role; (b). The parent's satisfaction with the relationship with her or his own child; and (c) Satisfaction with the parent's own performance in the parenting role. To improve family communication and increase empathy toward family members, teachers may have a parent's spouse or children complete the scale as he or she believes the parent would respond. Information derived from family members can then be compared with the parent's own responses to identify areas of concordant or discordant perceptions and determine areas in which clinical intervention could improve relationships. The PSS can be completed for siblings of the child with autism. The PSS can be administered in 20 minutes.

The Parenting Stress Index (3rd ed.) (PSI-III) identifies stressful areas in parent-child interactions. It is administered individually and takes 20 to 30 minutes to complete. There is a short form that takes 10 minutes. This screening and diagnostic instrument assumes that the total stress a parent experiences is a function of child characteristics, parent characteristics, and situations that are directly related to the role of being a parent. Child characteristics are measured in six subscales: distractibility, hyperactivity, adaptability, reinforces parent, demandingness, mood, and acceptability.

The parent personality and situational variables component consists of seven subscales: competence, isolation, attachment, health, role restriction, depression, and spouse. The PSI is particularly helpful in assessing early identification of dysfunctional parent-child systems, prevention programs aimed at reducing stress, intervention and treatment planning in high stress areas, family functioning and parenting skills, and assessment of child-abuse risk.

The PSI Short Form is a derivative of the full-length test and consists of a 36- item, self-scoring questionnaire profile. It yields a Total Stress score from three scales: parental distress, parent-child dysfunctional interaction, and difficult child.

The Parental Stress Scale (PSS) is a newly developed general measure of stress. Analyses of responses completed by 1,276 parents suggested that the PSS is reliable, both internally and over time. Initial evaluation of the PSS showed a stable consistency for assessing stress across parents of differing parental characteristics. The validity of PSS scores was supported by predicted correlations with measures of relevant emotions and role satisfaction and significant discrimination between 129 mothers of children in treatment for emotional-behavioral problems and developmental disabilities compared with mothers of children not receiving treatment. Factor analysis suggested a four-factor structure underlying responses to the PSS.

The Questionnaire on Resources and Stress (QRS) consists of 55 items on 11 scales: parental affliction, pessimism about child development, overprotection/dependency, anxiety about the future of the child, social isolation, burden for members of the family, financial problems, lack of family integration, intellectual incapacitation, physical incapacitation, and need for the care of the child. The QRS contains 285 items in 15 rational nonoverlapping scales. It was administered to parents of 43 individuals with disabilities four-sixteen years old evaluated in an outpatient psychiatry clinic. The QRS is used in research to assess ecological causes of stress and general levels of stress in families.

The Family Adaptability and Cohesion Evaluation Scale (FACES III and FACES IV) provides measures of perceived cohesion and adaptability of families. This instrument is relatively well researched. It has been used to assess, for example, the differences between "the ideal and the real representation of family," as perceived by parents and adolescent children. FACES has been used to assess marital satisfaction. Combined with the Clinical Rating Scale, a related family assessment instrument, these two assessment tools can be used for making a diagnosis of family functioning and for assessing changes over the course of treatment.

The Family Assessment Interview (FAI) is a simple protocol for collecting information from families in preparation for selecting and designing an intervention plan. Items in this brief instrument are designed to enable a "good contextual fit" for the intervention strategy. Interview data based on family members' ideas and reactions to the function of problem behaviors, support strategies, and issues for implementation are actively solicited throughout the assessment and support plan development process. The family assessment interview focuses on information about the ways in which the family structures its daily patterns and routines. It helps identify the family's successful strategies for addressing problem behaviors. Sources of stress for the family are identified and discussed.

The Child Improvement Locus of Control Scale (CILC) assesses belief about a child's ability to improve. The instrument is based on two research studies to develop and validate the CILC scales. In the first study, 145 parents (average age 37.8 years) of autistic children completed a questionnaire tapping beliefs about their children's improvement. In Study 2, 175 parents of physically ill children were given the CILC items. The following relationships were observed: (a) parental beliefs in child influence increased with child age; (b) belief in external factors (chance and divine Influence) was greater among African American parents; and (c) belief in parent influence decreased with illness severity.

The Family Environmental Scale (FES) is an inventory which assesses behavior patterns within the family on subscales, such as control, active-recreational orientation, intellectual cultural orientation, and cohesion. Norms are available on large national samples of distressed families as well as smaller samples of families with autistic children. The FES can be given to parents at the beginning and middle of the child's intervention program. It assesses family dynamics at key points during the intervention process. The questionnaire can be completed by both of the child's parents if both participate in the child's care.

Other Assessment Options

Standardized videotape assessment

A critical component of progress assessment is objective behavioral measurement documented by an ongoing videotaped database - a luxury afforded by school laboratory programs. Each child is videotaped daily for five minutes according to a systematic sampling procedure arranged to track
children across different activities, times of day, and days of the week. The unique feature of the video database is that there are no contrived observational conditions; children are videotaped at preset times wherever they happen to be, doing whatever they happen to be doing. Video-tapes are scored by a highly trained intervention team to obtain objective, reliable measures of language, social, and engagement variables.

Videotaped formal and informal language samples are obtained; they are then evaluated by the speech pathologist to determine age appropriateness of communication in the area of social development.

Complete medical examination

A comprehensive neurological and physical examination with laboratory tests that include blood and urine screening, thyroid and liver function, and complete blood count (CBC) is recommended to rule out medical conditions that might interfere with a child's ability to learn. Tests used to detect debilitating medical conditions associated with ASD are electroencephalogram (EEG), electrocardiogram (EKG), imaging techniques, and chromosome studies where indicated.

Audiometric assessment

Impairments in auditory processing and hearing acuity should be ruled out before formal intervention procedures begin. Depending on the child's level of communication and awareness, audiological testing should be used to verify that hearing, especially in the speech range, is within normal limits. If the child's active participation in audiological testing is not possible, auditory evoked response (AER) studies can be performed. Research has shown that in a subgroup of children with autism, AER studies detect significant deviations in auditory processing. In addition, the audiologist will interview the child's parents for information related to hearing ability.


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Behavioral Disorders: Focus on Change
 
Students who are referred to as having "conduct disorders" and students who are referred to as having "emotional disabilities," "behavioral disorders," "serious emotional disturbances," or "emotional and behavioral disorders" have two common elements that are instructionally relevant: (1) they demonstrate behavior that is noticeably different from that expected in school or the community and (2) they are in need of remediation.
 
In each instance, the student is exhibiting some form of behavior that is judged to be different from that which is expected in the classroom. The best way to approach a student with a "conduct disorder" and a student with a "behavioral disorder" is to operationally define exactly what it is that each student does that is discrepant with the expected standard. Once it has been expressed in terms of behaviors that can be directly observed, the task of remediation becomes clearer. A student's verbally abusive behavior can be addressed, whereas it is difficult to directly identify or remediate a student's "conduct disorder," since that term may refer to a variety of behaviors of widely different magnitudes. The most effective and efficient approach is to pinpoint the specific behavioral problem and apply data-based instruction to remediate it.
 
IDENTIFY NEW BEHAVIORS TO BE DEVELOPED

Two questions need to be addressed in developing any behavior change procedure regardless of the student's current behavioral difficulty: "What do I want the student to do instead?" and "What is the most effective and efficient means to help the student reach his or her goals?" Regardless of whether the student is withdrawn or aggressive, the objective is to exhibit a response instead of the current behavior. We may want the student to play with peers on the playground instead of playing alone. We may want the student to play appropriately with peers on the playground instead of hitting peers during games. For both behavior patterns, we have identified what we want them to do instead of the current problem behavior.
 
Using effective teaching strategies will promote student academic and social behavioral success. Teachers should avoid focusing on students' inappropriate behavior and, instead, focus on desirable replacement behaviors. Focusing behavior management systems on positive, prosocial replacement responses will provide students with the opportunity to practice and be reinforced for appropriate behaviors. Above all else, have fun with students! Humor in the classroom lets students view school and learning as fun. Humor can also be used to avoid escalating behaviors by removing the negative focus from the problem.
 
PROVIDE OPPORTUNITIES TO PRACTICE NEW BEHAVIORS

If we expect students to learn appropriate social skills we must structure the learning environment so that these skills can be addressed and practiced. We need to increase the opportunity for students to interact within the school environment so that prosocial skills can be learned. If all a student does is perform as a passive participant in the classroom, then little growth in social skill acquisition can be expected. Just as students improve in reading when they are given the opportunity to read, they get better at interacting when given the opportunity to initiate or respond to others' interactions.

It is necessary to target specific prosocial behaviors for appropriate instruction and assessment to occur. Prosocial behavior includes such things as
 
  • Taking turns, working with partner, following directions.
  • Working in group or with others.
  • Displaying appropriate behavior toward peers and adults.
  • Increasing positive relationships.
  • Demonstrating positive verbal and nonverbal relationships.
  • Showing interest and caring.
  • Settling conflicts without fighting.
  • Displaying appropriate affect.
TREAT SOCIAL SKILLS DEFICITS AS ERRORS IN LEARNING

Social skills deficits or problems can be viewed as errors in learning; therefore, the appropriate skills need to be taught directly and actively. It is important to base all social skill instructional decisions on individual student needs. In developing a social skill curriculum it is important to follow a systematic behavior change plan.

During assessment of a student's present level of functioning, two factors should be addressed. First, the teacher must determine whether the social skill problem is due to a skill deficit or a performance deficit. The teacher can test the student by directly asking what he or she would do or can have the student role play responses in several social situations (e.g., "A peer on the bus calls you a name. What should you do?").
 
* If the student can give the correct response but does not display the behavior outside the testing situation, the social skill problem is probably due to a performance deficit.
 
* If the student cannot produce the socially correct response, the social skill problem may be due to a skill deficit.
 
More direct instruction may be required to overcome the skill deficits, while a performance deficit may simply require increasing positive contingencies to increase the rate of displaying the appropriate social response. During assessment, it is important to identify critical skill areas in which the student is having problems.
 
Once assessment is complete, the student should be provided with direct social skill instruction. At this point, the teacher has the option of using a prepared social skill curriculum or developing one independently. It is important to remember that since no single published curriculum will meet the needs of all students, it should be supplemented with teacher-developed or teacher-modified lessons.
 
Social skill lessons are best implemented in groups of 3 to 5 students and optimally should include socially competent peers to serve as models. The first social skill group lesson should
focus on three things:
 
(1) an explanation of why the group is meeting,
(2) a definition of what social skills are, and
(3) an explanation of what is expected of each student during
the group. It may also be helpful to implement behavior management procedures for the group (i.e., contingencies for for compliance and non- compliance).
 
It is important to prompt the students to use newly learned skills throughout the day and across settings to promote maintenance and generalization. It is also important to reinforce the students when they use new skills.
 
TEACH STUDENTS TO TAKE RESPONSIBILITY FOR THEIR OWN LEARNING

Often overlooked is the need to increase student independence in learning. Students with BD may be particularly uninvolved in their learning due to problems with self-concept, lack of a feeling of belonging to the school, and repeated failures in school. Instructional strategies involving self-control, self-reinforcement, self-monitoring, self-management, problem solving, cognitive behavior modification, and metacognitive skills focus primarily on teaching students the skills necessary for taking responsibility and showing initiative in making decisions regarding their own instruction. These strategies, typically used in combination or in a "package format" that incorporates extrinsic reinforcement, have shown promise for enhancing student learning and independence.
 
FOCUS ON FUNCTIONAL SKILLS THAT WILL HAVE BROAD APPLICATIONS

Essential in a curriculum for students with behavioral problems are skills that can directly improve the ultimate functioning of the student and the quality of his or her life. The concept of functional skills is not limited to the areas of self-help or community mobility, but also include skills such as those required to seek and access assistance, be life-long independent learners, respond to changes in the environment, succeed in employment, be adequately functioning adults and parents, and achieve satisfying and productive lives. The concepts of the functional curriculum approach, the criterion of ultimate functioning, and participation to the highest degree possible in life must be extended to students with BD, many of whom will otherwise fail to fulfill their potential. 
 

Not sure of the difference between a Section 504 Plan and an IEP? Basically a Section 504 is a list of modifications to be done in the classroom. It DOES NOT include any services such as resource or any other special education services. An IEP includes services AND modifications.

Please click on underlined text to take you to the website described under each heading.

Forms

Forms for IEP, Behavioral Plans, Evaluation/Eligibility, Hearing/Vision Screening, Preschool forms, Re-Evaluation, Prior Written Notice, Speech/Language Evaluation, Transition and much more!

Individual Education Plan (IEP)

This is a link to an IEP Guide list where you will find unbelievable help and links. My friend Sharon is the owner (I'm one of the co-moderators). Sharon has found an astounding amount of information for parents of special needs children. If you need help in dealing with your school (IEP's, IEE's, etc.) this is the list to join! The list is not just for general chat. There is a message board for that.

Addressing Problem Behaviors in Schools:Use of Functional Assessments and Behavior Intervention Plans.

Addressing Student Problem Behavior-An IEP team's introduction to Functional Behaviorial Assessment and Behavior Intervention Plans.

Checklist for an effective IEP.

Educational Assessment Tests.

Educational Implications:Ideas for Classroom Management

ERIC Clearinghouse on Disabilities and Gifted Education (ERIC EC).

IEP 4 U ~ Objectives by subject, curriculum, ability, etc.

Making IEP Goals Measurable.

Parental Rights to an Individual Education Evaluation.

Parent's Guide to Understanding Developmental Assessment.

Preparing for your child's IEP.

Sample IEP Goals.

Sample Individual Education Plans

Sample Individualized Education Program(IEP)and Guidance Document December 2002

The following is an exceptionally well-researched and documented example of a parent letter to an IEP (or ARD) Committee. Please note disclaimer at site :the information contained in this article should not take the place of a consultation with an attorney who specializes in educational disability law, especially in the event that parents fail to reach agreement with the IEP (or ARD) Committee.

You'll find hundreds of articles, cases, newsletters, and other information about special education law and advocacy in the Wrightslaw Advocacy and Law Libraries.

The Individuals with Disabilities Education Act (IDEA) is the law that guarantees all children with disabilities access to a free and appropriate public education.

Complete text of the IDEA '97 Final Regulations

Great site contains links to on-line resources including the new regulations for the 1997 Amendments to the law, training materials, interpretive memos from the U.S. Department of Education, State Improvement Grant (SIG) information, and more.

Order a free copy of the IDEA Regs from this Government site.

Related Services

Special Education Guide For Parents - Related Services

Section 504

A chart comparing provisions of IDEA, 504, and the ADA

Council of Educators for Students with Disabilities'

PACER Center - Parent Advocacy Coalition for Educational Rights - Meeting the Needs of All Students

Section 504 and IDEA: Basic Similarities and Differences.

Special Education

A comprehensive list of links dealing with all areas of disability and special education law. Special education in New Jersey: Process, Procedure, Resources

A consumer advocacy network in the state of Washington which provides information, referral, and training related to assistive technology(AT) devices. Services include lists of resources that offer consultation, advocacy, and legal representation for these and other AT issues.

An Austin, Texas based non profit organization that represents the disabled community, including special education. The emphasis is to devote resources to the most significant problems identified by the disability community.

Assists teachers, school administrators and related service providers to appropriately implement recent changes to the United States' primary special education law, IDEA '97.

Autism/PDD Resources Network ~ Information and laws about disabilities and education helpful to parents of disabled children. Includes a question and answer guide involving special education.

Center for law and policy concerning disability rights that has information about the Americans with Disability Act as well as other laws protecting the rights of the disabled, including the educationally disabled.

CLE (Center for Law and Education) works to vindicate the rights of students with disabilities, emphasizing low-income children and youth. It participates in litigation, federal and state legislative advocacy, and technical assistance to attorneys and parents.

Consortium for Appropriate Dispute Resolution ~ This organization provides technical assistance to both school districts and parents, and serves as an information clearinghouse on dispute resolution in special education.

DRA is a national and international organization dedicated to protecting and advancing the civil rights of people with disabilities. Run by and for people with disabilities, DRA pursues its mission through research, education, and legal advocacy.

Educational resource for parents, advocates, attorneys and school personnel on the educational rights of children with disabilities to a free appropriate public education.

Fact sheets and information concerning IDEA.

Federal Resource Center for Special Education ~ Special education technical assistance project funded by the U.S. Department of Education's Office of Special Education and Rehabilitative Services, and is part of the Regional Resource and Federal Centers Network.

Teaching Students with Fetal Alcohol Syndrome/Effects.

Special Education Parent Orientation Guide:Related Services for IEP

Provo City, Utah School District - Excellent site. Main url is http://www.provo.k12.ut.us/; url provided here will lead you to directly to several valuable special education forms. Note: forms are in PDF format; you will need Adobe Acrobat to read them.

SNAP (Special Needs Advocate for Parents)provides information, education, advocacy, and referrals to families with special needs children of all ages and disabilities. Directory of attorneys and speakers bureau is also available.

SPAN (Statewide Parent Advocacy Network, Inc.)is a non-profit educational and advocacy center for parents of children from birth to 21 years of age. This N.J. organization assists families of infants, toddlers, children and youth with and without disabilities.

Special Education and Disability Links ~ Loaded with information on Assistive Technology, Disability Organizations, Educational Associations, Autism, OCD, and more.

State Departments of Education.

State Directors of Special Education.

The Special Education Network is a website dedicated to providing information and resources on the Education of Children with Special Needs for parents, teachers, and Special Ed administrators.

The Special Education Team ~ Wisconsin Department of Public Instruction presentation containing information concerning advocacy, special education resources and links, Title I entitlements, and school improvement.


Transition

National Information Center for Children and Youth with Disabilities (NICHCY) - (FAQs) Lots of great information, including discussion of options after high school. This is referred to as transition planning. Transition planning can begin at age 14 or earlier.

Saskatchewan Education - Special Education Unit Teaching Students with Autism - A Guide for Educators

Transition Services Guide TRANSITION GUIDE FOR WASHINGTON

University of Nebraska-Lincoln "101 Things You Can Do the First Three Weeks of Class" - Information includes:Helping Students Make Transitions, Directing Students Attention, Challenging Students, Providing Support, and Encouraging Active Learning

EXTENDED SCHOOL YEAR (ESY) 


WHAT IS ESY?

ESY is special education and related services beyond the normal school year that are provided to a child with a disability - for instance, in the summer or during school vacations.


WHO SHOULD RECEIVE ESY SERVICES?

A child must be given ESY services if the IEP Team determines that the services are necessary to provide the child with a free appropriate public education. Appropriate services are individualized to meet the needs of the student, take account of the child's potential as well as his or her deficits and learning needs, and are reasonably calculated to yield meaningful education or early intervention benefit.

Here are examples of children with disabilities for whom ESY is especially important:

Children who lose skills or behaviors relevant to the child's IEP goals and objectives while school is out, and have difficulty catching up. (This is usually called "regression" and "recoupment.")

Children who have not yet fully learned and generalized an important skill or behavior, and who therefore need help learning and practicing that skill in the formal educational setting.

Children whose disability makes them vulnerable to interruptions in the educational program, and who are therefore at risk of withdrawing from the learning process.

Children who have a degenerative condition and who need ESY to prevent or delay loss of skills or behaviors.


IS ESY LIMITED TO CHILDREN WITH SEVERE DISABILITIES?

No! When considering the need for ESY services, the IEP Team must pay particular attention to students with disabilities that are thought of as severe (that is, students with autism/pervasive developmental disorder, serious emotional disturbance, moderate or severe levels of mental retardation, degenerative impairments and severe multiple disabilities) and IEP goals that are associated with self-sufficiency and independence from caretakers. IEP Teams may not limit their consideration of need for ESY services to students with particular types of disabilities or particular IEP goals.


CAN SCHOOL DISTRICTS PLACE LIMITS ON THE TYPE AND AMOUNT
OF ESY SERVICES THAT CHILDREN CAN RECEIVE?

School districts cannot limit the kind of ESY services students with disabilities can get (for example, a district cannot say we provide special education, but no therapies); the amount of services (for example, a district cannot say that we only offer 2 periods/week of physical therapy); or the duration of those services (for example, a district cannot say we only offer 6 weeks of ESY in the summer). ESY eligibility and program decisions, like all other decisions about special education and related services for students with disabilities, must be made on an individualized basis by the IEP Team (which includes the parents), and the Team's decisions must be listed on the children's IEPs.


WHEN AND WHERE DO I APPLY FOR ESY?

At the annual IEP meeting for every child with a disability, the IEP Team must raise and discuss whether the child needs ESY services. The IEP meeting to consider ESY for children with severe emotional disturbances, autism, moderate and severe levels of retardation or multiple disabilities must occur no later than February 28 of each school year. The Notice of Recommended Educational Placement, which contains the IEP Team's ESY determination for these children, must be issued by March 31 of the school year. The February-March deadlines do not apply for other children with disabilities, but a parent can request an IEP meeting to determine ESY eligibility at any time, and must get a written decision regarding ESY which can be appealed on an expedited basis.


WHAT MUST I PROVE TO GET ESY SERVICES?

A child does not have to experience a year of lost skills or other damage to prove that he or she qualifies for ESY. Similarly, a parent does not need to prove that a child has lost skills in the past. Districts must consider "predictive" data that these problems will occur if the child's education program is interrupted. Some examples of this kind of predictive data are the opinions of doctors, educators, parents or others based on their observations of the child or their experience with other children with similar problems. School districts should also consider the child's year-to-year progress in past IEPs.

It is important to plan ahead because data, reports, recommendations, and other information can be crucial to the decision. Test results and "hard data" on regression and recoupment are helpful, but are not required. Types of information that can also be helpful include evidence that the child has not progressed on important goals in consecutive IEPs; reports, observations and opinions from educators, therapists or others having contact with the student before and after interruptions in education; reports by parents of their experiences in the home; medical or other agency reports

showing progressive difficulties which get worse during breaks in educational services; and results of tests, curriculum-based assessments, ecological life skills assessments and other equivalent measures.


IS IT NECESSARY FOR THE ESY SERVICES TO BE LISTED IN THE IEP?

Yes. The IEP should describe the goals and benchmarks for the ESY program; all ESY services and their frequency; where the services will be provided and at what times; and the dates they will start and stop. If the child needs related services (such as physical therapy or transportation), these must also be listed.


WHAT SHOULD I DO IF I DO NOT AGREE WITH THE IEP TEAM ABOUT ESY ELIGIBILITY OR SERVICES?

If the school district does not agree to provide ESY, or wants to provide fewer or different services from those desired by the parent, the parent may try to resolve the disagreement through mediation, or request a pre-hearing conference and/or an impartial hearing. If the child had ESY last summer, he must be offered the same program this summer, unless the parent agrees that the program should be changed or a Hearing Officer decides that a change should be made.


WHAT KIND OF ESY PROGRAMS HAVE CHILDREN RECEIVED?

ESY is not limited to basic and self-help skills. It can include academic or vocational programs. Some examples of ESY programs which have been provided to children are: tutoring, keyboarding, camp socialization programs, and summer school.

Funding for this brochure was provided, in part, by Pennsylvania Protection & Advocacy, Inc., pursuant to the Developmentally Disabled Assistance and Bill of Rights Act, P.L. 101-496, and the P&A for Mentally Ill Individuals Act, P.L. 99-319.


Prepared by: Education Law Center (Rev. 6/01)
(215) 238-6970 (Philadelphia)
(412) 391-5225 (Pittsburgh)
http://www.elc-pa.org

Source url:  http://www.psrn.org/esyfact.html

*************************************

TRANSITION CHECKLIST
 
The following is a checklist of transition activities to consider when preparing Individual Transition Plans (ITP) with the IEP team. The student skills and interests will determine which items are relevant. Use the checklist as a guide for developing transition activities and should be included in the IEP.
 
Four to Five Years Before Leaving the School District
 
1. Identify personal learning styles and the necessary accommodations to be a successful learner and worker.
2. Identify career interests and skills, complete interest and career inventories and identify additional education or training requirement
3. Explore options for post-secondary education and admission criteria.
4. Identify interests and options for future living arrangements, including supports.
5. Learn to communicate effectively your interests, preferences, and needs.
6. Be able to explain your disability and the accommodations you need.
7. Learn and practice informed decision making skills.
8. Investigate assistive technology tools that can increase community involvement and employment opportunities.
9. Broaden your experiences with community activities and expand your friendships.
10. Pursue and use local transportation options outside of family,
11. Investigate money management and identify necessary skills.
12. Acquire identification card and the ability to communicate personal information.
13. Identify and begin learning skills necessary for independent living.
14. Learn and practice personal health care.
 
Two to Three Years Before Leaving the School District
 
1. Identify community support services and programs ( Vocational Rehabilitation, County Services, Center for Independent Living, etc.)
2. Invite adult services providers, peers and others To the ITP/IEP meeting.
3. Match career interest and skills with vocational course work and community work experiences..
4. Gather more information on post secondary programs and the support services offered; and make arrangements for accommodations to take college entrance exams. Identify health care providers and become informed about sexuality and family planning issues,
5. Determine the need for financial support ( Supplemental Security Income, state financial supplemental programs, medicare.)
6. Learn and practice appropriate interpersonal communication, and social skills for different settings, ( employment, school, recreation, etc).
7. Explore legal status with regards to decision making prior to age of majority.
8. Begin a resume and update it as needed
9. Practice independent living skills, e.g., budgeting, shopping, cooking, and housekeeping.
10. Identify needed personal assistant services, and if appropriate, learn to direct and manage these services.
 
One Year Before Leaving the School District
 
1. Apply for financial support (Supplemental Security Income, Independent Living Services, Vocational Rehabilitation, and Personal Assistant Services)
2. Identify the post secondary school you plan to attend and arrange for accommodations.
3. Practice effective communication by developing interview skills, asking for help, and identifying necessary accommodations as post secondary and work environments,
4. Specify desired job and obtain paid employment with supports as needed.
5. Take responsibility for arriving on time to work, appointments, and social activities.
6. Register to vote and for selective service ( if male).
 
What will the students do after leaving high school?
 
Consider college or adult education
 
1. Community College
2. Adult education
3. Trade or technical school
 
Consider a Job
 
1. Competitive employment
2. Supported employment
3. Volunteer placement
4. Community based adult day programs
 
Finding employment and training service
 
1. Vocational training
2. Placement programs
 
Accommodations and technology
 
Transportation
 
1. Bus
2. Drive
3. Walk
 
Where will they live?
 
1. There own apartment
2. With a roommate
3. Residential care facility
4. Live independently
5. College dormitory
6. Family residence
 
Making ends meet
 
1. Wages and benefits
2. Supplemental security Income (SSI)
3. Plan for Achieving Self Support (PASS)
4. Food Stamps
5. Income/trust
6. Funding for assistive devices and technology
 
Medical services
 
1. Health insurance
2. Dental needs
3. Health plan
4. Medical
5. Medical needs
 
Living on his/her own
 
1. Domestic activities
2. Consumer skills
3. Personal attendant
4. Money management
5. Voter registration
6. Draft registration
 
What about legal help?
 
1. Guardianship
2. Conservatorship
3. Wills
 
Friends, relationships and social life
 
1. Friends
2. Sex education
3. Children
4. Family support
5. Marriage
6. Religion
7. Co-workers
8. Family planning
9. Spirituality
 
Leisure time
 
1. Hobbies
2. Health and fitness activities
3. Clubs
4. Community Center programs
 
Making his/her own choices ~ self-advocacy
 
1. Making decisions
2. Setting goals
3. Know how to get help
4. Knowing what you need to learn
5. Knowing how to find other resources
6. Problem solving
7. Standing up for ones self

U.S. school policy against bullying

 

http://www.ed.gov/PressReleases/07-2000/PolicyDisabilityharassment.doc

 

UNITED STATES DEPARTMENT OF EDUCATION

WASHINGTON, D.C. 20202

 

July 25, 2000

  

  

Dear Colleague:

 

On behalf of the Office for Civil Rights (OCR) and the Office of Special Education and Rehabilitative Services (OSERS) in the U.S. Department of Education, we are writing to you about a vital issue that affects students in school harassment based on disability.  Our purpose in writing is to develop greater awareness of this issue, to remind interested persons of the legal and educational responsibilities that institutions have to prevent and appropriately respond to disability harassment, and to suggest measures that school officials should take to address this very serious problem.   This letter is not an exhaustive legal analysis.  Rather, it is intended to provide a useful overview of the existing legal and educational principles related to this important issue.

 

Why Disability Harassment Is Such an Important Issue

 

Through a variety of sources, both OCR and OSERS have become aware of concerns about disability harassment in elementary and secondary schools and colleges and universities.   In a series of conference calls with OSERS staff, for example, parents, disabled persons, and advocates for students with disabilities raised disability harassment as an issue that was very important to them.  OCR's complaint workload has reflected a steady pace of allegations regarding this issue, while the number of court cases involving allegations of disability harassment has risen.  OCR and OSERS recently conducted a joint focus group where we heard about the often devastating effects on students of disability harassment that ranged from abusive jokes, crude name-calling, threats, and bullying, to sexual and physical assault by teachers and other students.  

 

We take these concerns very seriously.  Disability harassment can have a profound impact on students, raise safety concerns, and erode efforts to ensure that students with disabilities have equal access to the myriad benefits that an education offers.  Indeed, harassment can seriously interfere with the ability of students with disabilities to receive the education critical to their advancement.  We are committed to doing all that we can to help prevent and respond to disability harassment and lessen the harm of any harassing conduct that has occurred.  We seek your support in a joint effort to address this critical issue and to promote such efforts among educators who deal with students daily.

 

What Laws Apply to Disability Harassment 

 

Schools, colleges, universities, and other educational institutions have a responsibility to ensure equal educational opportunities for all students, including students with disabilities.  This responsibility is based on Section 504 of the Rehabilitation Act of 1973 (Section 504) and Title II of the Americans with Disabilities Act of 1990 (Title II), which are enforced by OCR.  Section 504 covers all schools, school districts, and colleges and universities receiving federal funds.[1]  Title II covers all state and local entities, including school districts and public institutions of higher education, whether or not they receive federal funds.[2]  Disability harassment is a form of discrimination prohibited by Section 504 and Title II.[3]  Both Section 504 and Title II provide parents and students with grievance procedures and due process remedies at the local level.  Individuals and organizations also may file complaints with OCR.

 

States and school districts also have a responsibility under Section 504, Title II, and the Individuals with Disabilities Education Act (IDEA),[4] which is enforced by OSERS, to ensure that a free appropriate public education (FAPE) is made available to eligible  students with disabilities.  Disability harassment may result in a denial of FAPE under these statutes.  Parents may initiate administrative due process procedures under IDEA, Section 504, or Title II to address a denial of FAPE, including a denial that results from disability harassment.  Individuals and organizations also may file complaints with OCR, alleging a denial of FAPE that results from disability harassment.  In addition, an individual or organization may file a complaint alleging a violation of IDEA under separate procedures with the state educational agency.[5]  State compliance with IDEA, including compliance with FAPE requirements, is monitored by OSERS Office of Special Education Programs (OSEP).

 

Harassing conduct also may violate state and local civil rights, child abuse, and criminal laws.  Some of these laws may impose obligations on educational institutions to contact or coordinate with state or local agencies or police with respect to disability harassment in some cases; failure to follow appropriate procedures under these laws could result in action against an educational institution.  Many states and educational institutions also have addressed disability harassment in their general anti-harassment policies.[6]

 

Disability Harassment May Deny a Student an Equal Opportunity to Education under Section 504 or Title II

 

Disability harassment under Section 504 and Title II is intimidation or abusive behavior toward a student based on disability that creates a hostile environment by interfering with or denying a students participation in or receipt of benefits, services, or opportunities in the institutions program.  Harassing conduct may take many forms, including verbal acts and name-calling, as well as nonverbal behavior, such as graphic and written statements, or conduct that is physically threatening, harmful, or humiliating. 

 

When harassing conduct is sufficiently severe, persistent, or pervasive that it creates a hostile environment, it can violate a student's rights under the Section 504 and Title II regulations.  A hostile environment may exist even if there are no tangible effects on the student where the harassment is serious enough to adversely affect the student's ability to participate in or benefit from the educational program.  Examples of harassment that could create a hostile environment follow.

 

           Several students continually remark out loud to other students during class that a student with dyslexia is "retarded" or "deaf and dumb" and does not belong in the class; as a result, the harassed student has difficulty doing work in class and her grades decline.

 

          A student repeatedly places classroom furniture or other objects in the path of classmates who use wheelchairs, impeding the classmates' ability to enter the classroom. 

 

           A teacher subjects a student to inappropriate physical restraint because of conduct related to his disability, with the result that the student tries to avoid school through increased absences.[7]

 

          A school administrator repeatedly denies a student with a disability access to lunch, field trips, assemblies, and extracurricular activities as punishment for taking time off from school for required services related to the student's disability.

 

           A professor repeatedly belittles and criticizes a student with a disability for using accommodations in class, with the result that the student is so discouraged that she has great difficulty performing in class and learning.

 

           Students continually taunt or belittle a student with mental retardation by mocking and intimidating him so he does not participate in class. 

 

 

When disability harassment limits or denies a student's ability to participate in or benefit from an educational institution's programs or activities, the institution must respond effectively.  Where the institution learns that disability harassment may have occurred, the institution must investigate the incident(s) promptly and respond appropriately. 

 

Disability Harassment Also May Deny a Free Appropriate Public Education

 

Disability harassment that adversely affects an elementary or secondary students education may also be a denial of FAPE under the IDEA, as well as Section 504 and Title II.  The IDEA was enacted to ensure that recipients of IDEA funds make available to students with disabilities the appropriate special education and related services that enable them to access and benefit from public education.  The specific services to be provided a student with a disability are set forth in the students individualized education program (IEP), which is developed by a team that includes the students parents, teachers and, where appropriate, the student.  Harassment of a student based on disability may decrease the students ability to benefit from his or her education and amount to a denial of FAPE. 

 

How to Prevent and Respond to Disability Harassment

 

Schools, school districts, colleges, and universities have a legal responsibility to prevent and respond to disability harassment.  As a fundamental step, educational institutions must develop and disseminate an official policy statement prohibiting discrimination based on disability and must establish grievance procedures that can be used to address disability harassment.[8]  A clear policy serves a preventive purpose by notifying students and staff that disability harassment is unacceptable, violates federal law, and will result in disciplinary action.  The responsibility to respond to disability harassment, when it does occur, includes taking prompt and effective action to end the harassment and prevent it from recurring and, where appropriate, remedying the effects on the student who was harassed.

 

The following measures are ways to both prevent and eliminate harassment:

 

           Creating a campus environment that is aware of disability concerns and sensitive to disability harassment; weaving these issues into the curriculum or programs outside the classroom.

 

           Encouraging parents, students, employees, and community members to discuss disability harassment and to report it when they become aware of it.

 

           Widely publicizing anti-harassment statements and procedures for handling discrimination complaints, because this information makes students and employees aware of what constitutes harassment, that such conduct is prohibited, that the institution will not tolerate such behavior, and that effective action, including disciplinary action, where appropriate,  will be taken.

 

           Providing appropriate, up-to-date, and timely training for staff and students to recognize and handle potential harassment.

 

           Counseling both person(s) who have been harmed by harassment and person(s) who have been responsible for the harassment of others.

 

           Implementing monitoring programs to follow up on resolved issues of disability harassment.

 

           Regularly assessing and, as appropriate, modifying existing disability harassment policies and procedures for addressing the issue, to ensure effectiveness.

 

Technical Assistance Is Available

 

U.S. Secretary of Education Richard Riley has emphasized the importance of ensuring that schools are safe and free of harassment.  Students can not learn in an atmosphere of fear, intimidation, or ridicule.  For students with disabilities, harassment can inflict severe harm.  Teachers and administrators must take emphatic action to ensure that these students are able to learn in an atmosphere free from harassment. 

 

Disability harassment is preventable and can not be tolerated.  Schools, colleges, and universities should address the issue of disability harassment not just when but before incidents occur.  As noted above, awareness can be an important element in preventing harassment in the first place. 

 

The Department of Education is committed to working with schools, parents, disability advocacy organizations, and other interested parties to ensure that no student is ever subjected to such conduct, and that where such conduct occurs, prompt and effective action is taken.  For more information, you may contact OCR or OSEP through 1-800-USA-LEARN or 1-800-437-0833 for TTY services.  You also may directly contact one of the OCR enforcement offices listed on the enclosure or OSEP, by calling (202) 205-5507 or (202) 205-5465 for TTY services.

 

Thank you for your attention to this serious matter. 

 

Enclosure - list of OCR enforcement offices



[1] Section 504 provides: "No otherwise qualified individual with a disability . . . shall, solely by reason of  her or his disability, be excluded from the participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving federal financial assistance.  29 U.S.C. § 794(a).  See 34 CFR Part 104 (Section 504 implementing regulations).

 

[2] Title II provides that no qualified individual with a disability shall, by reason of such disability, be excluded from participation in or be denied the benefits of the services, programs, or activities of a public entity, or be subjected to discrimination by any such entity.  42 U.S.C. § 12132.  See 28 CFR Part 35 (Title II implementing regulations).

 

[3] The Department of Educations Office for Civil Rights (OCR) has issued policy guidance on discriminatory harassment based on race (see 59 Fed. Reg. 11448 (Mar. 10, 1994),) and sex (see 62 Fed Reg. 12034 (Mar. 13, 1997), ).  These policies make clear that school personnel who understand their legal obligations to address harassment are in the best position to recognize and prevent harassment, and to lessen the harm to students if, despite their best efforts, harassment occurs.  In addition, OCR recently collaborated with the National Association of Attorneys General (NAAG) to produce a guide to raise awareness of, and provide examples of effective practices for dealing with, hate crimes and harassment in schools, including harassment based on disability.  See Protecting Students from Harassment and Hate Crime, A Guide for Schools, U.S. Department of Education, Office for Civil Rights, and the National Association of Attorneys General (Jan. 1999) (OCR/NAAG Harassment Guide), Appendix A: Sample School Policies.   The OCR/NAAG Harassment Guide may be accessed on the internet at www.ed.gov/pubs/Harassment/.  These documents are a good resource for understanding the general principle of discriminatory harassment.  The policy guidance on sexual harassment will be clarified to explain how OCR's longstanding regulatory requirements continue to apply in this area in light of recent Supreme Court decisions addressing the sexual harassment of students.

 

[4] 20 U.S.C. §1400 et seq.

 

[5] 34 C.F.R. § 300.660 et seq.

 

[6] For more information regarding the requirements of state and local laws, consult the OCR/NAAG Harassment Guide, cited in footnote 3 above.

 

[7] Appropriate classroom discipline is permissible, generally, if it is of a type that is applied to all students or is consistent with the Individuals with Disabilities Education Act (IDEA) and Section 504, including the students Individualized Education Program or Section 504 plan.

 

[8]  Section 504 (at 34 CFR § 104.7) and Title II (at 28 CFR § 35.107(a)) require that institutions have  published internal policies and grievance procedures to address issues of discrimination on the basis of disability, which includes disability harassment.  While there need not be separate grievance procedures designed specifically for disability harassment, the grievance procedures that are available must be effective in resolving problems of this nature.

 

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *

 

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Why Methodology Belongs in your Child's IEP

Compiled by Frank Stepnowski,revised 7/30/05.

This article outlines the regulations which permit parents to discuss methodology at an IEP meeting. This is a continuing work in progress, which started in December 2000 and appeared in its first form in the AutismNews newsletter in January 2000.  I have over the months incorporated a number of findings from my own research, as well as leads suggested by contributors to the Council of Parent Advocates and Attorney  (COPAA).  I thought there was a need to compile all the different authorities regarding methodology into a single framework, with appropriate references to legal authority. Although originally directed to Illinois law, this article can apply in any State covered by IDEA.
 

Please remember that the Law is constantly changing and may not apply in particular instances.  Do not rely on the content of this article as legal advice.


New
 

The 2004 Amendments to IDEA

In 2004, Congress amended 20 U.S.C. sec. 1414 as follows:
SEC. 614. EVALUATIONS, ELIGIBILITY DETERMINATIONS, INDIVIDUALIZED EDUCATION PROGRAMS, AND EDUCATIONAL PLACEMENTS.
(d) INDIVIDUALIZED EDUCATION PROGRAMS.--
(1) DEFINITIONS.--In this title: (A) INDIVIDUALIZED EDUCATION PROGRAM.-- (i) IN GENERAL.--The term `individualized education program' or `IEP' means a written statement for each child with a disability that is developed, reviewed, and revised in accordance with this section and that includes-- 
(I) a statement of the child's present levels of academic achievement and functional performance, including-- 
(aa) how the child's disability affects the child's involvement and progress in the general education curriculum; 
(bb) for preschool children, as appropriate, how the disability affects the child's participation in appropriate activities; and 
(cc) for children with disabilities who take alternate assessments aligned to alternate achievement standards, a description of benchmarks or short-term objectives; 
(II) a statement of measurable annual goals, including academic and functional goals, designed to-- 
(aa) meet the child's needs that result from the child's disability to enable the child to be involved in and make progress in the general education curriculum; and 
(bb) meet each of the child's other educational needs that result from the child's disability; 
(III) a description of how the child's progress toward meeting the annual goals described in subclause (II) will be measured and when periodic reports on the progress the child is making toward meeting the annual goals (such as through the use of quarterly or other periodic reports, concurrent with the issuance of report cards) will be provided;

(IV) a statement of the special education and related services and supplementary aids and services, based on peer-reviewed research to the extent practicable, to be provided to the child, or on behalf of the child, and a statement of the program modifications or supports for school personnel that will be provided for the child-- 

(aa) to advance appropriately toward attaining the annual goals;
(bb) to be involved in and make progress in the general education curriculum in accordance with subclause (I) and to participate in extracurricular and other nonacademic activities; and 
(cc) to be educated and participate with other children with disabilities and nondisabled children in the activities described in this subparagraph;
(V) an explanation of the extent, if any, to which the child will not participate with nondisabled children in the regular class and in the activities described in subclause (IV)(cc); 
(VI)(aa) a statement of any individual appropriate accommodations that are necessary to measure the academic achievement and functional performance of the child on State and districtwide assessments consistent with section 612(a)(16)(A); and
(bb) if the IEP Team determines that the child shall take an alternate assessment on a particular State or districtwide assessment of student achievement, a statement of why-- (AA) the child cannot participate in the regular assessment; and (BB) the particular alternate assessment selected is appropriate for the child;
(VII) the projected date for the beginning of the services and modifications described in subclause (IV), and the anticipated frequency, location, and duration of those services and modifications ...

So the key provision of the changes is this:

(IV) a statement of the special education and related services and supplementary aids and services, based on peer-reviewed research to the extent practicable, to be provided to the child, or on behalf of the child, and a statement of the program modifications or supports for school personnel that will be provided for the child--
The special education must be based on peer-reviewed research, not something eclectic that someone in the SpEd department heard about.  That is good news.  However, the clause is modified by "to the extent practicable."

Back on July 3, 1863, General Robert E. Lee sent orders to General Ewell on the first day of the Battle of Gettysburg to attack the Union position on Culp's Hill "if practicable." Ewell did not know what that meant, and did not attack.  The Union army was able to entrench itself on the hill and thus started the second day of the battle with a strong position.  The choice of words had a big impact on the outcome of the battle and the war.  The lesson is that if left "practicable" is left to the discretion of the School Districts, it just won't happen; they will see that anything different from what they had been doing will not be practicable.  The courts will have to decide whether a modification is practicable.  If current trends are followed, courts may use a "reasonable" standard.  In the Seventh Circuit, courts let school districts do anything as long as they act "reasonably."  A better interpretation would be "if not impossible," since "they are not allowed to make decisions based on  'cost prohibitive."

The methodology language of 1997 IDEA arose from the regulations, as described in the article below.  The regulation is currently being revised to comply with the statutory changes.  The proposed version would be 34 CFR 300.38:

§ 300.38 Special education.
(a) General. (1) Special education means specially designed instruction, at no cost to the parents, to meet the unique needs of a child with a disability,
(3) Specially designed instruction means adapting, as appropriate to the needs of an eligible child under this part, the content, methodology, or delivery of instruction—
(i) To address the unique needs of the child that result from the child’s disability; and
(ii) To ensure access of the child to the general curriculum, so that he or she can meet the educational standards within the jurisdiction of the public agency that apply to all children.
copyright 2005 by Frank Stepnowski
See 2004 discussion below.


 
No Child Left Behind Act- December 2003 status
On December 9, 2003, the Department of Education issued a new regulation which changed the application of the Act to children whith profound disabilities.  SpEd lawyers are hotly debating whether this law guts the Act for children with disabilities or whether the use of the "best" in the regulation is a bonus.
August 29, 2003, Update:
Susan Etscheidt has written an article entitled:  "An Analysis of Legal Hearings and Cases Related to Individualized Education Programs for Children with Autism."  Research & Practice for Persons with Severe Disabilities, 2003, vol. 28, No. 2, p 51-69, copyright TASH 2003. 
The author reviewed 68 cases of administrative and judicial decisions related to appropriate programs for children with autism.  She identified three primary factors:
  • IEP goals must be matched to evaluation data,
  • IEP members must be qualified to develop programs, and
  • the methodology selected must be able to assis the students in acheiving IEP goals.
Address all correspondence and requests for prints to Susan Etschadt at the Univ of N. Iowa, Cedar Falls, IA, 50614 etscheidt@uni.edu

Introduction

In 1997, Congress amended the IDEA, the Individuals with Disabilities Education Act, which is the law implementing the constitutional guarantee of equal educational rights of children with disabilities.  In 1999, the Federal Department of Education issued its regulations which supply the details to implement the law.  The Illinois State Board of Education issued its regulations for Illinois schools in August 2000.  A State's rules cannot restrict a right protected by Federal law.

 One of the most important clarifications in recent Federal law deals with methodology.  As background, twenty years ago the U.S. Supreme Court issued an opinion interpreting the prior law, in which it stated that as long as the school district had a reasonable methodology leading to a student's progress, the parents could not require the school to adopt a different method.  Schools often interpreted this decision to say that the parents could not discuss methodology at an IEP meeting, even when the schools had no methodology.

In 1997, Congress wrote directly into the statute that the implementation of IDEA was impeded by low expectations and an insufficient focus on applying replicable research on  proven methods of teaching and learning for children with disabilities.  20 U.S.C. sec. 1400 (c) (4).  President Bush also made the same sentiments when he signed the No Child Left Behind Act in January 2002:  " . . . We need to know whether the methodologies the teachers are using are working! . . ."
 

The 1999 Regulations: Special Education includes methodology!

The 1997 reauthorization of IDEA and the 1999 regulations eliminated the schools' misinterpretation by specifically including methodology as part of the instruction individualized for the student.  The 1997 act defines "Special Education" as "Specially designed instruction, at no cost to the parents, to meet the unique needs of a child with disabilities."  20 U.S.C. sec. 1401 (25). The 1999 regulations further defined instruction as follows:
“Sec. 300.26  Special education.
    (a) General. (1) As used in this part, the term special education means specially designed instruction, at no cost to the parents, to meet the unique needs of a child with a disability, including--
    (i) Instruction conducted in the classroom, in the home, in hospitals and institutions, and in other settings;
    (3) Specially-designed instruction means adapting, as appropriate to the needs of an eligible child under this part, the content, methodology, or delivery of instruction--
    (i) To address the unique needs of the child that result from the child's disability; and
    (ii) To ensure access of the child to the general curriculum, so that he or she can meet the educational standards within the jurisdiction of the public agency that apply to all children.”
 This section is one of the most important clarifications of the law.  It means parents can discuss the content, methodology and delivery of the education, and not leave the details to the school to work out 6 months into a 9-month school year.  Methodology may be more important to children with autism and language disorders than any other facet of their program.  (Note, however, the definition of “Specially designed instruction” was conspicuously omitted from the August 2000 Illinois regulations.  Beware of school districts which cling to the old evasions and will not discuss methodology at the IEP meeting on the basis that the Illinois regulations are silent on the issue.  Under the supremacy clause of the U.S. Constitution, State regulations cannot take away a Federal right.  Insist the IEP team discuss methodology and state their reasons in writing.)

 To enable the definition of methodology, the 1999 Federal regulations specify:

“Sec. 300.347  Content of IEP.
    (a) General. The IEP for each child with a disability must include--...
    (3) A statement of the special education and related services and supplementary aids and services to be provided to the child, or on behalf of the child, and a statement of the program, modifications or supports for school personnel that will be provided for the child--
    (i) To advance appropriately toward attaining the annual goals;
    (ii) To be involved and progress in the general curriculum in accordance with paragraph (a)(1) of this section and to participate in extracurricular and other nonacademic activities; and
    (iii) To be educated and participate with other children with disabilities and nondisabled children in the activities described in this section.”
In short: the IEP must include a statement of the special education to be provided (300.347(a)(3)), and special education is defined to include "content, methodology or delivery of instruction." (300.26(a)(3)).